On November 12th, Shane completed his last treatment on the original protocol. The following Monday he was scheduled for a PET scan, but the scanner broke and we were rescheduled for Friday. This meant Shane had to be starved twice in one week. Through it all, he was smiling, walking and being his happy self. Before the, Read More

It’s been almost a week since we had Shane’s MRI. A lot has happened and things about to change. Unfortunately, the MRI showed a 1.3 cm nodule in his pancreas. All other organs are clear and the site of the primary mass has continued to shrink (mm’s). At the time of diagnosis, his pancreas, Read More

Today, Paul and I are sitting at CHOP waiting for Shane to wake up from a surprise MRI. I got the call Monday asking about sedation for an MRI before I even knew he was scheduled for one. Apparently the doctors felt it would be useful to have a recent scan since we are, Read More

Yesterday we finished week 31 and were home in time for some Halloween fun! We are now into Round 3 of our treatment schedule. The end is near and the thought is hopeful and frightening at the same time. This week was long and at some points difficult. Shane had been off of treatment, Read More

Shane completed his inpatient treatment and enjoyed the holiday weekend down the shore. He enjoyed the carousel as you can tell from the pure joy on his face. About 5-9 days after this treatment he is neutropenic. We laid low from Monday on. On Wednesday he went to clinic to get blood work to, Read More

I am about a week behind! So, reverse to last Wednesday…. Shane did great today. He even slept in clinic, which is RARE! His port access was a bit too dramatic for me though. Every time we head to CHOP, I need to take a tegaderm and add numbing cream to it so that, Read More

Shane finished his five day outpatient this week with little to no problems. He looked and acted much better this time around then last, but there had been more time between the last time we did this. He’s mobile now, which makes him having lines and a pole much more challenging. We kept pace, Read More

Last week was a good week. It was his easy treatment week and his numbers came back up. The doctors were glad to see him back to his usual self. This week we started the five day treatments. Today we clocked 5 hours at CHOP. His numbers were great and he was a social, Read More

The good news is we get out of CHOP today, the bad news is we have been here since Wednesday night. We took Shane to clinic on Wednesday for his routine easy treatment. He was not his usual nosy, mobile self, instead he chose to nap on PopPop. His counts were OK, with only, Read More

This is our family celebrating September 1, 2014. Today is not only Labor Day, but it is the start to childhood cancer awareness month. This time last year I would have had no idea about it either. It’s like they say, you never think it will happen to you and then it does. We, Read More