This Thursday we took an early morning journey from the shore to CHOP, so that Shane could complete his inpatient treatment for week 22 (half way done!!). We pushed his treatment back a day so we could celebrate big brother’s 7th birthday. We arrived at 7:20 am and he completed his treatment at 4, Read More

This week we completed week 20 of 42. It’s unbelievable that we have made it this far. It’s been a gut wrenching, emotional journey. Shane is an amazing lil guy and we are so lucky to be his parents. He has been so strong and brave through all of this and in parallel he, Read More

Yesterday we finished Shane’s 5 day outpatient treatment. I am so thankful that we only have to be inpatient for one of his treatments since we are now confident in doing this 5 day one outpatient. It is a long week and takes it toll on our little guy. He NEVER sleeps while we are, Read More

We had a terrific week. Shane only had blood counts this week, so no chemo. We bypassed a fever scare from possible teething, but I won’t lie- it was stressful. He did not need a blood transfusion and continues to grow more peach fuzz. Next week, we begin another five day treatment. Fingers crossed, Read More

It’s been awhile since we’ve updated. Life has been busy and it’s hard to believe it’s been 2 weeks since Shane turned one. On the 14th we began a 5 day treatment and completed it in the day hospital as an outpatient. It was successful and I don’t feel we have to be inpatient, Read More

THANK YOU to our family and friends who traveled near and far to help us celebrate Shane’s 1st Birthday. It was a big victory day and we were so grateful and blessed to share it with all of you. Thank you for all the emails of birthday wishes for Shane. We set up a, Read More

Today our little superhero is one. He had a great week and his numbers are higher than mine (probably). This is awesome for a party weekend!

Happy Independence Day!One week from today, Shane will be one. It is so bittersweet. I haven’t posted in awhile because we have been enjoying some family time after his last chemo session. Shane gets two weeks off (no chemo, just blood counts). We went to CHOP last Wednesday and after talking with his doctors,, Read More

Thank you for your comments, emails, texts and calls. We are overwhelmed by the amount of support and touched that our little guy has won so many of your hearts. Tomorrow we head back to CHOP for Week 13, the end of Round 1 of treatments. We will be inpatient since it’s a three, Read More

Thursday was the day. We are at the 12 week mark, a little less than a third of the way through treatments. This was the day we get to see what kind of progress has been made. Shane was scheduled for a Pet Scan, CT Scan, an MRI and a round of chemo. That’s a, Read More