About
Shane’s Future Days is a 501(c)(3) volunteer non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395
What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
I know it’s been a awhile, but I assure you we have been busy behind the scenes planning and reaching out to begin our holiday giving program. Everything this year has been slow. I mean when the weather has been in the 60’s (not anymore!), it’s hard to think that the holidays are right around the corner!
We currently have families lined up and are awaiting their wish lists.
The arrival of the holidays fills us with excitement and anxiety. We started the month with a scary accident that landed us back in a medical setting. Thankfully it wasn’t serious, but the entire situation sent us into emotional turmoil and we are still feeling its affects.
What others don’t realize is that it creates a ripple effect that triggers things in our and our children’s lives.
After the loss of Shane, I’ve realized that nothing is “normal” for us.
As we balance the emotional affects of the situation, enter in the
holidays. As happy of a time it can be, at times it can be quite sad when you are missing an important piece of your heart and family. Creating new memories and traditions while missing Shane tugs at our hearts.
Will has brought new life into our family unit. We are so blessed to have him and we often say how Shane picked a good one for us. The new baby brings about a new dynamic for us not just in everyday life, but in our life as a cancer family.
Some have said to us that we can move on from what happen to Shane because we have Will. They are wrong. What we do with Shane’s Future Days gives us purpose and continues Shane’s legacy and allows us to live in a world without him.
Helping families during the holidays is therapy to us. It helps us get through the season. We look forward to the shopping as we remember being on the receiving end and how a simple act can bring so much relief and knowledge knowing the kindness of others.
So as the holidays begin, remember to be thankful for your blessings. Remember those who have lost and be gentle. Sometimes in life we create our own stresses, not realizing there are others dealing with much greater and real stresses that are beyond their control.
Happy Thanksgiving. Thank you for your continued support.
We hope everyone enjoyed Halloween!
We have been busy lining up our families for our holiday gift drive! It’s hard to believe the season is upon us already!
As a family affected by cancer, we can tell you that while you want to really live and enjoy those moments during the holidays, it can also be difficult.
Financially cancer can ruin a family and make it difficult to afford the holiday they want to give their children. Then there is the time aspect. When you are stretched thin on time because you’ve been in the hospital for treatments and often times juggling a home life with siblings, you simply don’t have the time.
If you would like to assist this holiday season, please contact us.
For every $50 donation, we will send you a Shane’s Future Days shirt!
As we experience our first holiday with Will, I am full of memories of the two Halloweens we were able to spend with Shane.
I think each year about what Shane would want to dress up as and what he would think of this holiday.
His first, he was only 3 months old, so he was a “go with the flow” kind of baby. By his second Halloween, he had pretty strong feelings about wearing hats on his head.
Even so, the holiday is a loved one in our house and every year I try to make it special….pumpkin picking, pumpkin carving, decorating the house (Ella has now expanded to include her bedroom in this, as this is HER favorite holiday) and of course spending the night trick or treating with them. They are so full of excitement.
So, we take the time to experience the moment and these times with our children. Seeing their smiles and hearing their laughter is much clearer to me since my precious baby boy, Shane taught me to really live.
Happy Halloween sweet Shane. You are dearly missed on this and every holiday.
Wow. Thank you for such heartfelt congratulations and blessings for Will 
❤️.
This weekend was busy as Fall weekends usually are for us. It was filled with many soccer games.
Today was also senior day for the Drexel Dragons women’s soccer team. While we were unable to make it to the game, we are thrilled for their win at today’s game (Chase’s team won too!).
We are thankful for their partnership with Ella and Chase that was arranged through the Kisses for Kyle Foundation. Thank you Sharon❤️
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Here is a wonderful article written about the experience:
http://drexeldragons.com/news/2017/10/12/womens-soccer-madison-dunns-journey-to-amoment-much-bigger-than-senior-day.aspx