Shane’s Future Days is a 501(c)(3) non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395 .
Our 4th annual Celebration of Life event will KICK off with soccer friendlies starting at 12 pm, followed by the opening of the COL at 1PM.
Thank you for all of those we registered already!!
Tickets can be bought at the door and remember all proceeds go to childhood cancer research and programs.
The YETI raffle for early registration is now CLOSED. I will be picking the winner in a little bit….stay tuned!
While there is so much involved with planning this event, Paul and I both agree this is the one day of the year where this event makes it a little less sad.
Today, we celebrate our precious Shane and his courageous fight and we are excited about the future treatment advancements for alveolar rhabdomyosarcoma.
Tentative schedule for the day:
Soccer friendlies start: 12 PM
COL/raffles open 1 PM
Lunch 2 PM and will be a continuous flow throughout the event
Raffles close 4:45 PM
*Inflatables will be open 1-6
*Face painting will be open 1-4
* Snow cones will be open on/off throughout the day
Prior to the COL we are hosting a few soccer friendly’s starting at 12:00. Schedule below.
Special thanks to the three teams attending and we have t-shirts.
Fishtown Rowdies (blue)
Union plus a few VE kids (green)
12:00pm – Rowdies vs. 1776
12:40pm- Rowdies vs. Union
1:20pm- Union vs. 1776
We appreciate the participation from these area soccer clubs!
Shane loved soccer.
He spent much of his life on sidelines watching his big brother play and most days you would see him doing pullbacks and shooting on net at home.
It’s a wonderful addition to our event!
Our Celebration of Life event has brought people in from all over the Philadelphia area and beyond.
We are so thankful to highlight our city with generous ticket donations to some of our area’s incredible places.
Thank you to Adventure Aquarium, Longwood Gardens and Philadelphia Museum of Art for your generous ticket donations to our 4th annual COL!
I’m often asked on weeks like this:
“How do you do it?”
It’s busy and for the most part my mind is compartmentalized.
But once during this week of prepping, I have to let it all out.
This morning Will reached for his clothes and pulled out a onesie. It wasn’t just any onesie. It was first Chase’s and then Shane’s. It’s the Pearl Jam one in our cover picture and is framed in our home.
Then we read books. He again reached for a book and it wasn’t any book, it was Shane’s book, “On the Night You were Born.” Honestly, I haven’t read it since I read it to Shane. The cardinal towards the end caught my breath.
During Will’s nap (yes a shocking surprise today), I put background noise on while I printed and organized the raffles.
For whatever reason, “Collateral Beauty” was on.
Tissues later, I got all the bottled up feelings out.
Our COL event is like planning a birthday party every year for my son who never gets to have that birthday party. It’s to honor him and children like him.
It’s to raise awareness and research funds to change the outcome of these high risk childhood cancer realities and to allow these children to live to have their birthday parties.
“The meaning is simple, the damage of a child’s death is so dark and severe that a parent cannot see the full picture because of the tragedy.
It may take a lifetime to understand that within that dark and ugly place there was a beauty and love there so strong that not even death could dishevel it ….that in fact, the beauty is that love continues even after and through death and the impact of that trauma brings us closer to the love that we shared for that person and all the ways love of that individual has affected our lives and the lives of others.”