About
Shane’s Future Days is a 501(c)(3) volunteer non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395
What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
Our board member and dear friend, Andy Burr has signed up through Haymakers for Hope to fight against cancer. Haymakers for Hope is a 501(c)(3) charity organization helps train people to compete in a sanctioned charity boxing event to raise funds for cancer research, care, awareness and survivorship. Andy is raising money and fighting for Shane’s Future Days.
The fight will take place on April 27, 2023 at 7:30 p.m. at the
The Fillmore Philadelphia
29 E Allen St, Philadelphia, PA 19123
In Andy’s words…
https://haymakersforhope.org/event/philadelphia/2023/liberty-bell-brawl/andy-burr
Why I fight?
An excerpt from my Dad’s social media post on 1/16/2020, 18 days later we said goodbye, he was at home, with the Eagles Superbowl win playing on a constant loop for two days.
“…Two nights ago the team (Oncologist, Colon Surgeon, and Urologist)came in to talk to me…. I knew that wasn’t a good sign. I was correct. Long story short, despite great care, I am out of options. They gave me anywhere from a few weeks to maybe six months. I don’t physically feel bad now. Will probably be going home tomorrow . Hospice to follow at some point. I just want to be kept comfortable with a reasonable quality of life for what ever time I have left.
I had a great life….. No regrets. Pretty much got to do everything I wanted. Retired at 50 and used that time to dive my ass off. Loved every minute of it. 71 wonderful years…. Blessed with phenomenal kids and grandkids, as well as making great friends along the way….. Two amazing wives too. Not at the same time….
Sorry this didn’t have a better outcome…”
I have had the honor to be part of Shane’s Future Days for years, my Dad was proud I was part of this amazing charity, started by my friends Paul and Michelle Metzgar in honor of their amazing son Shane, spreading Shane’s strength, and memory to help so many others, children with cancer, families going through their child’s battle with cancer. I am raising funds for Haymakers for Hope through my participation in the Liberty Bell Brawl, and I have chosen Shane’s Future Days as the beneficiary of the donations I raise. I will pull on Shane’s strength and determination, and I will hear my Dad in my head.
I fight for my Dad, I fight for Shane, I fight for my friends who have defeated cancer, I fight for my friends and family who have lost a loved one to cancer (I started naming them, but sadly it is a list too long). I fight to do my small little part in battling this beast.
We made this video for my Dad the night before his first surgery, the message still stands. F Cancer!
https://www.dropbox.com/s/9va2ijcjh3pyonw/BLEEP%20RICHS%20CANCER%20HI%20RES.mp4?dl=0
September is childhood cancer awareness month. We decided it is the perfect time to host our first in person fundraising event in two years!
Bowl Over Childhood cancer is on September 24, 2022 from 1-5pm at South Bowl!
Ticket prices are $50 for adults and $25 for kids. The price includes: bowling, shoe rental, non alcoholic drinks and food. Raffle baskets and silent auction too!
We also have a lane sponsorship opportunity. The cost is $500. Your name or logo will be featured during the entire event above your lane and on the lane screen. Additionally, your name and logo will be mentioned on our website and social media outlets.
Purchase your tickets and sponsorships below!
Proceeds from this event will go towards our “Shane’s Beats from the Heart” bereavement project in collaboration with the Children’s Hospital of Philadelphia’s Palliative care team.
South Bowl is a “STRIKINGLY DIFFERENT” bowling experience!
Our event will be held in their downstairs, private billiard room, pizza cafe and the yard.
Downstairs area: 16 bowling lanes, bar, arcade games
Private billiard room: 6 bowling lanes, billiard tables and arcade games
The Yard: slow and fast pitch batting cages, two 40 foot bocce courts, shuffleboard, horseshoes, an outdoor arcade with billiards, an outdoor bar and lounge,
On July 2, 2022, Chase and Ella held their 6th annual LemonAID stand in Ventnor, NJ at the Ocean Breeze Art Center. This lemonAID stand started in 2015 after Shane passed. Chase wanted to do something to give back and in memory of Shane. Ella was a bit younger then, but she was the lead salesperson. It only took a year later for her name to be added to the stand.
We are so thankful to Susan Van Duyne for the opportunity each year.
The kids have donated the money raised from their stand to various organizations over the years. This year, they chose the Children’s Cancer Therapy Development Institute (www.cc-TDI.org). Chase and Ella know where the money is going and how it will be used, which means the most to them.
