Can you feel it?
The hustle & bustle of the holidays.
I feel it too.

I want to put into perspective what some families affected by childhood cancer are feeling. What we felt a short 3 years ago. What we still feel in terms of our grief.

Some of the families we are helping this year are preparing for a wish trip, another has a child on hospice, one is bereaved, another a new diagnosis and one more facing a relapse.

Other families we know are entering their first holiday season without their child. Others have yet to celebrate the holidays even after 3-4 or more years since their child has passed.

Others are like ours and help other families and siblings affected by childhood cancer during the holidays.

It’s what helps when you are reminded of your lost child….
-a simple ornament
-the opening verse of your favorite Christmas song
-the traditions created, such as seeing Santa downtown
-their stocking

The list goes on….

I know it’s been a awhile, but I assure you we have been busy behind the scenes planning and reaching out to begin our holiday giving program. Everything this year has been slow. I mean when the weather has been in the 60’s (not anymore!), it’s hard to think that the holidays are right around the corner!
We currently have families lined up and are awaiting their wish lists.

The arrival of the holidays fills us with excitement and anxiety. We started the month with a scary accident that landed us back in a medical setting. Thankfully it wasn’t serious, but the entire situation sent us into emotional turmoil and we are still feeling its affects.
What others don’t realize is that it creates a ripple effect that triggers things in our and our children’s lives.
After the loss of Shane, I’ve realized that nothing is “normal” for us.
As we balance the emotional affects of the situation, enter in the
holidays. As happy of a time it can be, at times it can be quite sad when you are missing an important piece of your heart and family. Creating new memories and traditions while missing Shane tugs at our hearts.

Will has brought new life into our family unit. We are so blessed to have him and we often say how Shane picked a good one for us. The new baby brings about a new dynamic for us not just in everyday life, but in our life as a cancer family.

Some have said to us that we can move on from what happen to Shane because we have Will. They are wrong. What we do with Shane’s Future Days gives us purpose and continues Shane’s legacy and allows us to live in a world without him.

Helping families during the holidays is therapy to us. It helps us get through the season. We look forward to the shopping as we remember being on the receiving end and how a simple act can bring so much relief and knowledge knowing the kindness of others.

So as the holidays begin, remember to be thankful for your blessings. Remember those who have lost and be gentle. Sometimes in life we create our own stresses, not realizing there are others dealing with much greater and real stresses that are beyond their control.

Happy Thanksgiving. Thank you for your continued support.


Day 3: Lost moments

When you lose a child, you can’t help but wonder what the future would have held for them.

As time goes by, you move along through the motions and sometimes it hits you…what could have been, where would Shane be now and what would he have liked?

Paul and I experienced that this past weekend.
Soccer season has started.
Chase has been playing with his team in tournaments and Ella’s season started on Friday.

As we struggled with some apprehensions, we reminded Ella that Shane would be starting soccer this year too. As the words came out of our mouths, the emotions hit. Wow, he really would have been kicking around that soccer ball and playing in the same program as her.

He was doing pull-backs at 14 months old and made every game of his big brother’s since he was born and then when he could during his treatments.

We know we are not alone. Unfortunately lots of other families experience the lost moments of heading to college, another family vacation, the first day of school pics and the list goes on.

Our children are worth more than 4%.


On July 8th, Chase and Ella hosted their 3rd annual Alex’s Lemonade Stand in memory of their brother Shane and in support of sarcoma research. 

We couldn’t be prouder of these two. Chase has grown in the past two years in his ability to walk in to various shore businesses and ask them to advertise for his stand, while teaching Ella how she can help. They both draw in crowds, speaking of the importance of childhood cancer research and about their brother Shane.

In the past three years, they have successfully raised over $4,000!