Shane’s Future Days is a 501(c)(3) non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395 .
Our 5th annual Celebration of Life event is coming up!
June 15, 2019 from 1-6 at VE Club in Warminster, PA
We are working out the fine details as this year has proved to be challenging to plan.
We won’t let that stand in the way of us trying to honor our son Shane, his battle and the fight we have continued for raising research funds and awareness for high risk childhood cancers.
We have been blessed with some incredible raffle and auction items so far. Stay tuned to hear more about those.
If anyone/companies would like to donate goods, tickets, etc., please feel free to contact us.
Thank you for your continued support and we hope to see you in June!
I remember 5 years ago today and Shane had just finished his first round of chemo. We were inpatient and it was the first time I had to spend time away from the kids for Shane’s cancer journey.
This picture is the one we took when Shane (and I) finally came home.
We were obviously unaware of the national significance of the day…#nationalsiblingday.
Will spent the earlier part of the week pointing Shane out in pictures around our house. He has a word for him, but it’s more of a noise at the moment. It’s the same tone and unfortunately I can’t translate it…yet. His favorite was the picture of our family at Disney World. It hangs on our fridge. He asks for me to lift him up, so he can point Shane out.
He also eats his meals and looks up at the picture of all of them (second pic). He points to everyone and says their name, including the word he has for Shane.
I think of how unfair it is to Will to never know his big brother, Shane. How will this affect him as he grows up? There are so many questions and even more obstacles for us to jump.
For now, I am proud of my kids for the bond they share. The good, the bad, the loving moments, the yelling, the wrestling, the endless nerf gun battles that always end in tears, the good night hugs, the soccer lessons in the backyard, the stories shared and so much more.
I grew up an only child. All I ever wanted was to have my kids to have each other. I cherish it. I know what’s missing and unfortunately they do too.
Four years and it doesn’t get any easier.
We are living life to our fullest, never forgetting and always pushing forward with you by our side.
We love and miss you forever Shane.
CHOP contacted us in the Fall about an article they were writing highlighting the Palliative Care Team (PACT). They asked if we would like to contribute and of course we did.
They had a photographer come out and take pictures of Chase & Ella working with their child life specialist, Kelly. They were making ornaments for Shane’s tree and an additional handprint plate to include Will.
Last week, the finished article came out. It highlights how the PACT team has helped not just our family, but countless others.