Shane’s Future Days is a 501(c)(3) non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395 .
Shane’s Celebration of life fundraiser will be held on July 11, 2015 at VE Soccer Club in Warminster, Pennsylvania from 1 p.m. to 6 p.m. This date would have been Shane’s second birthday.
Our family is forever changed by Shane’s journey. The proceeds from this fundraiser will be benefit:
We donated Shane’s tumors to CCTDI where they are furthering research of rhabdomyosarcoma and other rare pediatric cancers. CHOP continues to be part of our family as the PACT guides us through these next steps in our lives and helps to ensure that our children are dealing with their grief.
The cost of the tickets are $30 for an individual and $60 for a family. This includes food (picnic food and salads) and drink (lemonade, water, as well as beer and wine). We are a family friendly event! There is a playground on site and we will have a moon-bounce and other surprises for the kids!
During the event, there will be a balloon release to celebrate Shane’s 2nd Birthday
Here is the eulogy from Shane’s funeral. Shane’s strength helped me get through it.
Shane Joseph Metzgar of Jenkintown, Pennsylvania passed away after a brave year-long fight with cancer on Monday, March 30, 2015 at his residence. He was 19 months old. Shane was born July 11, 2013 in Abington, Pennsylvania, the beloved son of Paul J. Metzgar and Michele Metzgar (nee – Hunt); cherished brother of Chase and Ella Metzgar. He is also survived by his paternal grandparents Paul W. and Helene Metzgar, maternal grandparents John J. and Christine Hunt, aunt Dana Lewullis and her husband Gabriel, uncle Daniel Metzgar and his fiancée Megan Gannon, and cousins, great aunts and uncles.
Shane’s life may have seemed short to some, but those who were touched by his gentle spirit understood that the quality of his life far exceeded the quantity of time. Shane taught us to live each day and cherish the memories we made with him. His fighting spirit, has given us the determination to move forward and make a change for him and children like him.
Shane will be remembered for his tenacious spirit, deep blue eyes and warm smile. He enjoyed listening to music and kicking the soccer ball around. He loved to watch and play with his brother and sister and cuddle with his pug Monty. Shane coveted his Arsenal hat, along with his Tigger and Curious George stuffed animals. At home, he was affectionately called “Baby Shane” and his caregivers at CHOP had nicknamed him the “Gerber Baby” and “Shane the Sheriff,” as he would always be seen patrolling the halls in the oncology clinic.
We would like to thank our amazing family, supportive friends and everyone who has followed and joined Shane’s journey. We are eternally grateful to his oncology doctors at CHOP, the nursing staff in the oncology clinic and inpatient floors and every other department at CHOP who helped care for our son.
Relatives and friends are invited to his Funeral Mass on Friday, April 10, 2015 at 10:00 A.M. at St. Cecilia Church, 535 Rhawn Street, Philadelphia, PA 19111 www.stceciliafc.org. The family is requesting that you wear color as they would like to celebrate the life of Shane. A celebration of Shane’s life will be planned for the future and this website will be updated when details are available.
With heavy hearts, we want to let everyone know Shane passed away yesterday morning. He went peacefully. This past weekend was a challenge as Shane took a turn for the worse. Time was of the essence. We were able to take final pictures and make various keepsakes with him. More importantly, we were able to say goodbye. We are truly blessed for the time we had with him. Blessed with all the love and support from family and friends. We can’t thank you all enough. Shane made us proud. He fought up until his last breath. We hope we make him proud. We are donating his tumors to the Keller Research Center, with the goal of finding more information about his type of rare cancer. In the world of rare cancers there is limited funding for obvious reasons. Without a voice, nothing will change. We hope Shane’s legacy can change that.
Information regarding funeral arrangements to follow. Thanks again for all the love and support.
We still plan on attending the PhanCave Opening Day fundraiser on Monday, April 6th. We hope you join us. This is the first day of Shane’s Future Days.