Help Us Celebrate

Shane impacted so many people in the short amount of time he was with us. We want to invite you to come and celebrate Shane’s life with us.
Shane Circle Shirt 512X512

Shane’s Celebration of life fundraiser will be held on July 11, 2015 at VE Soccer Club in Warminster, Pennsylvania from 1 p.m. to 6 p.m. This date would have been Shane’s second birthday.

Our family is forever changed by Shane’s journey. The proceeds from this fundraiser will be benefit:

ChildrensCancer Therapy Develpment Institute

The Children’s Cancer Therapy Development Institute



CHOP’s Pediatric Advanced Care Team (PACT)

We donated Shane’s tumors to CCTDI where they are furthering research of rhabdomyosarcoma and other rare pediatric cancers. CHOP continues to be part of our family as the PACT guides us through these next steps in our lives and helps to ensure that our children are dealing with their grief.

The cost of the tickets are $30 for an individual and $60 for a family. This includes food (picnic food and salads) and drink (lemonade, water, as well as beer and wine). We are a family friendly event! There is a playground on site and we will have a moon-bounce and other surprises for the kids!

During the event, there will be a balloon release to celebrate Shane’s 2nd Birthday
Read More

Say Hello to Heaven Post

We miss you buddy. We’ll always miss you.

Here is the eulogy from Shane’s funeral. Shane’s strength helped me get through it.

Sometimes superheroes reside in the hearts of small children fighting big battles. Although Shane stood 2 feet 6 inches and looked up to me, the truth is I looked up to him. He was my hero. Shane was born on 07/11/13. 8 Months later he was diagnosed with stage 4 alveolar rhabdomyosarcoma, one of the most aggressive forms of cancer around.

Shane’s diagnosis was terminal. We had two options; one, to do nothing and doing nothing would have given us weeks. The other option was chemotherapy. With chemo, there wasn’t a guarantee that his little body could withstand it. But Shane was strong and resilient. And thanks to CHOP, we were able to turn weeks into a year. For that, we are truly blessed.

We knew the percentages. We chose to ignore them. And I’m glad we did. We lived every day with the hope he was going to beat this. Without hope, you are left with nothing. I know there were many thoughts and prayers sent our way, praying for a miracle. Our miracle was the quality of life Shane lived. The tears we cried pale in comparison to the happiness and the joy he brought us.

Shane’s life may have seemed short to some, but those who were touched by his gentle spirit understood that the quality of his life far exceeded the quantity of time. Nothing slowed him down. Surgeries, chemo, scans, weekly hospital visits – Shane tackled every obstacle with a smile.

Our weekly trips to the hospital became routine. Shane would patrol the hallways, earning the nickname Shane the sheriff. He would greet patients with high fives and fist pumps. Shane brought so much joy to the hospital with his visits. Over the year, the doctors, nurses, and life services group became part of our family. Many chemo visits involved us rushing down the shore after his treatment, because Shane loved the beach. The doctors and nurses made this happen for us. Nothing, not even cancer could slow him down.

He grew up as any toddler would. Shane took his first steps. He spoke his first words…Ella, and eventually said everyone’s name in his family. Shane loved playing with his brother, whether it was Star Wars or soccer. He would kick the ball and yell goal! Shane also loved playing with his sister, Ella. She would set up the blocks, and Shane playing the role of Godzilla would knock them down and laugh hysterically. He thought the world of them, he wanted to be just like them.

A few days before Shane passed, we were at his big brother Chase’s soccer game. Shane’s body was withering away and the words he spoke turned into grunts, but the fight in his eyes was visible. Chase got hurt and came out of the game. Shane, who was in Michele’s arms, wiggled out and walked over Chase, as Michele followed behind. Shane patted Chase on the shoulder, but he wasn’t comforting him…no, Shane patted him, and pointed out to the field with a grunt, telling him, man-up big brother and get back out on the field. It was classic Shane.

Shane lived on his terms and went out on his terms. To quote Stuart Scott, the ESPN anchor who passed away from cancer, “When you die, it does not mean that you lose to cancer. You beat cancer by how you live, why you live, and in the manner in which you live.” These simple words have been so impactful to our family and symbolized Shane’s journey through life.

Shane may have lost the fight, but he won the battle. He beat cancer. He lived every day to the fullest. He taught us to cherish every moment we have. As a family, we beat cancer. Many times cancer can rip through a family, tearing it apart. Cancer brought our family closer together. We are so thankful for the love and support we received from family and friends over the course of this journey. It has and will continue to help move us forward.

Shane’s fighting spirit has given us determination to build upon his legacy. We created a foundation focused on rare cancer research called Shane’s Future Days. Without a voice, nothing will change. Shane’s voice will be heard. Please join us we start the first day of Shane’s future days.

Shane Joseph Metzgar Obituary 07:11:13 - 03:30:15 PostShane Joseph Metzgar of Jenkintown, Pennsylvania passed away after a brave year-long fight with cancer on Monday, March 30, 2015 at his residence.  He was 19 months old.  Shane was born July 11, 2013 in Abington, Pennsylvania, the beloved son of Paul J. Metzgar and Michele Metzgar (nee – Hunt); cherished brother of Chase and Ella Metzgar. He is also survived by his paternal grandparents Paul W. and Helene Metzgar, maternal grandparents John J. and Christine Hunt, aunt Dana Lewullis and her husband Gabriel, uncle Daniel Metzgar and his fiancée Megan Gannon, and cousins, great aunts and uncles.
Shane’s life may have seemed short to some, but those who were touched by his gentle spirit understood that the quality of his life far exceeded the quantity of time. Shane taught us to live each day and cherish the memories we made with him. His fighting spirit, has given us the determination to move forward and make a change for him and children like him.
Shane will be remembered for his tenacious spirit, deep blue eyes and warm smile. He enjoyed listening to music and kicking the soccer ball around. He loved to watch and play with his brother and sister and cuddle with his pug Monty. Shane coveted his Arsenal hat, along with his Tigger and Curious George stuffed animals. At home, he was affectionately called “Baby Shane” and his caregivers at CHOP had nicknamed him the “Gerber Baby” and “Shane the Sheriff,” as he would always be seen patrolling the halls in the oncology clinic.
We would like to thank our amazing family, supportive friends and everyone who has followed and joined Shane’s journey. We are eternally grateful to his oncology doctors at CHOP, the nursing staff in the oncology clinic and inpatient floors and every other department at CHOP who helped care for our son.
Relatives and friends are invited to his Funeral Mass on Friday, April 10, 2015 at 10:00 A.M. at St. Cecilia Church, 535 Rhawn Street, Philadelphia, PA 19111 The family is requesting that you wear color as they would like to celebrate the life of Shane. A celebration of Shane’s life will be planned for the future and this website will be updated when details are available.

Off he goes - RIP Shane PostWith heavy hearts, we want to let everyone know Shane passed away yesterday morning. He went peacefully. This past weekend was a challenge as Shane took a turn for the worse. Time was of the essence. We were able to take final pictures and make various keepsakes with him. More importantly, we were able to say goodbye. We are truly blessed for the time we had with him. Blessed with all the love and support from family and friends. We can’t thank you all enough. Shane made us proud. He fought up until his last breath. We hope we make him proud. We are donating his tumors to the Keller Research Center, with the goal of finding more information about his type of rare cancer. In the world of rare cancers there is limited funding for obvious reasons. Without a voice, nothing will change. We hope Shane’s legacy can change that.

Information regarding funeral arrangements to follow. Thanks again for all the love and support.

We still plan on attending the PhanCave Opening Day fundraiser on Monday, April 6th. We hope you join us. This is the first day of Shane’s Future Days.


The Metzgars