About
Shane’s Future Days is a 501(c)(3) volunteer non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395
What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
Day 27:
We present to you, a visual image of Shane’s tumor cells.
We are grateful for our collaboration with The Children’s Cancer Therapy Development Institute. Tumor donation and its research is a fundamental part of understanding Shane’s type of cancer.
Dr. Keller has said to me:
“Tumor donations, particular the tumors that defy all
therapy, are the key to developing the right new therapies. Hardly anything could be more important. The RD cell line was made in 1968. That’s a long time on plastic. The same for Rh30, made in 1987.
Yet all therapies developed between 1990 and 2015 used RD and Rh30. It’s just so much better to use contemporary tissues, cell lines, and models… from the hardest to cure RMS.”
Day 26:
On Sunday morning, we learned of the tragic passing of Florida Marlins pitcher Jose Fernandez in a boating accident.
Not only is Fernandez considered to be the best young pitcher in baseball, but he is known for his charitable giving within the pediatric rhabdomyosarcoma community.
In 2013, Fernandez was named Rookie of the Year. With little publicity, he kindly donated all of his award money to the Live Like Bella foundation. The money was used to fund preclinical alveolar rhabdomyosarcoma research projects. In 2014, Fernandez donated an additional $34,000 to the foundation who used it to fund a research trial at Oregon Health & Science University. Fernandez later joined they board of directors of the Live Like Bella foundation.
Not only did the baseball world lose such a young talented athlete, but the pediatric rhabdomyosarcoma world lost a great, young philanthropist.
Day 25:
Two years ago, we gathered by the Swann Fountain on the Ben Franklin Parkway surrounded by many family and friends.
It was the CHOP Parkway Walk/Run benefiting the oncology unit.
It was an amazing experience. Shane was doing well and we were so full of hope and determination. It was perfect and the feelings and emotions of that day are indescribable.
It is a memory that we need to preserve.
So, while we are not physically there, we are sending so much love and support to our friends who are there. Stay Strong Antonio, Team Nate, Team Shane, and Hurrikanen, we may not be there, but we are forever in your corner.
As a family who has been through a diagnosis and whirlwind within the cancer world, we have found so much support and love from our community.
When we heard about a young girl from our community needing prayers and support we wanted to help.
The ’07 VE Gunners and ’07 PA Rush Academy teams are playing and praying for you Phil!
