About
Shane’s Future Days is a 501(c)(3) volunteer non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395
What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
With heavy hearts, we want to let everyone know Shane passed away yesterday morning. He went peacefully. This past weekend was a challenge as Shane took a turn for the worse. Time was of the essence. We were able to take final pictures and make various keepsakes with him. More importantly, we were able to say goodbye. We are truly blessed for the time we had with him. Blessed with all the love and support from family and friends. We can’t thank you all enough. Shane made us proud. He fought up until his last breath. We hope we make him proud. We are donating his tumors to the Keller Research Center, with the goal of finding more information about his type of rare cancer. In the world of rare cancers there is limited funding for obvious reasons. Without a voice, nothing will change. We hope Shane’s legacy can change that.
Information regarding funeral arrangements to follow. Thanks again for all the love and support.
We still plan on attending the PhanCave Opening Day fundraiser on Monday, April 6th. We hope you join us. This is the first day of Shane’s Future Days.
Love,
The Metzgars
Join us for Phan Cave’s inaugural Opening Day Tailgate! We’re going to have local beer sponsors, food, a DJ, face painting station for the kids, tailgate games, plus “Wild Thing” Mitch Williams will make an appearance to take pictures and sign autographs!
Tickets are just $35 and you can get them here: http://phan-cave.ticketleap.com/phancaveod/details
Sponsors include: Phillies Nation, Philly PR Girl, Straub Beer,Conshohocken Italian Bakery and more to come!
We are honored to raise funds to Help Shane Fight Cancer and are excited to announce funds from ticket sales, proceeds from silent auctions and day of tailgate events will be donated to The Shane’s Future Days Foundation.
The page has been quiet. I know a lot of you have been contacting us and checking in to make sure everything is going OK. We appreciate your thoughtfulness. The truth is, Shane’s not doing well. We haven’t posted in a bit because we were letting all of this soak in. We took our memory trip at the best time, and honestly the only time. If you asked me how I would envision the difference in Shane’s health during the week in Disney, compared to the following week, I never would have thought so much would change. On March 6th, we made our last trip to the oncology clinic at CHOP. The current chemo was not working. Shane was scheduled to be on the chemo for 21 days and then off for 5 and so on. While on it, three new tumors appeared, as the already present tumors continued to grow. We went to clinic to discuss our options, but Paul and I knew we were out of options. The doctors agreed that the chemo wasn’t working. Unfortunately, there were no other treatment options left for Shane at CHOP. Our ties with CHOP will continue as he is now under the care of their Pediatric Advanced Care Team (PACT) and home hospice. As we said before, we will be forever tied to CHOP. We wouldn’t have made it this far in our journey without their guidance. The nurses, doctors, social workers and child life specialists are some of the most amazing people I will ever meet. Read More
We are incredibly honored to have Shane’s Future Days be chosen as the Phan Cave’s benefit charity for their Phillies Opening Day tailgate with Phillies Nation and Philly PR Girl! We hope to see you there! For more information you can contact us or head over to the Phan Cave’s facebook page.