Another Successful Five Week
Yesterday we finished Shane’s 5 day outpatient treatment. I am so thankful that we only have to be inpatient for one of his treatments since we are now confident in doing this 5 day one outpatient. It is a long week and takes it toll on our little guy. He NEVER sleeps while we are there, even though he can become a grumpy monkey and wants to sleep. This is either from the chemo (which tends to rev him up) or the fact that he is too nosy to go to sleep.
Monday was our longest day because he needs to go to triage, get his port accessed (it then stays accessed all week), see the doctor and get the chemo ordered. It was a 9:30-3:30 kind of day. Shane kept busy roaming the halls, introducing himself to new people and just making himself known. Tuesday he got a private music session from Mike the music guy. Shane LOVES music. He sings and sways as Mike plays the guitar and sings to him. Wednesday was hump day and Shane was not happy. He howled a lot and couldn’t get settled. He spent most of the day in the ergo carrier. Thursday he was content munching on his pink strawberry bagel and just roaming. Friday was great because daddy came and it was super helpful to have him there.
I met another family this week who were at CHOP for radiation treatment from north jersey. Their son has the same cancer as Shane. I have never met another child with the same one, as it is extremely rare. Their son is 6 and bravely endured 6 weeks of proton radiation and will continue on in his journey as we will ours. It was good and educational to speak with someone having to go through the same thing, with the same cancer, even if their ages are vastly different.
Next week, we’ll be back for his regular 15 minute treatment. Fingers crossed for no transfusions and a fast day.