Thank you to the Philadelphia Union for their generous ticket donation to our 5th annual COL!
We greatly appreciate your support and commitment to all you do for childhood cancer awareness ⚽️
A special THANK YOU to Morey’s Piers & Beachfront Water Parks for their generous donation of 2 Water Park passes.
We appreciate your participation in our 5th annual COL event and for supporting childhood cancer research and awareness.
The Philadelphia Wings have generously donated two tickets to any next year’s home game! Thank you for your support of our 5th annual COL!
Thank you for your donation of TWO American Girl dolls for this year’s 5th annual COL! We greatly appreciate your support!
Our 5th annual Celebration of Life event is coming up!
June 15, 2019 from 1-6 at VE Club in Warminster, PA
We are working out the fine details as this year has proved to be challenging to plan.
We won’t let that stand in the way of us trying to honor our son Shane, his battle and the fight we have continued for raising research funds and awareness for high risk childhood cancers.
We have been blessed with some incredible raffle and auction items so far. Stay tuned to hear more about those.
If anyone/companies would like to donate goods, tickets, etc., please feel free to contact us.
Thank you for your continued support and we hope to see you in June!
I remember 5 years ago today and Shane had just finished his first round of chemo. We were inpatient and it was the first time I had to spend time away from the kids for Shane’s cancer journey.
This picture is the one we took when Shane (and I) finally came home.
We were obviously unaware of the national significance of the day…#nationalsiblingday.
Will spent the earlier part of the week pointing Shane out in pictures around our house. He has a word for him, but it’s more of a noise at the moment. It’s the same tone and unfortunately I can’t translate it…yet. His favorite was the picture of our family at Disney World. It hangs on our fridge. He asks for me to lift him up, so he can point Shane out.
He also eats his meals and looks up at the picture of all of them (second pic). He points to everyone and says their name, including the word he has for Shane.
I think of how unfair it is to Will to never know his big brother, Shane. How will this affect him as he grows up? There are so many questions and even more obstacles for us to jump.
For now, I am proud of my kids for the bond they share. The good, the bad, the loving moments, the yelling, the wrestling, the endless nerf gun battles that always end in tears, the good night hugs, the soccer lessons in the backyard, the stories shared and so much more.
I grew up an only child. All I ever wanted was to have my kids to have each other. I cherish it. I know what’s missing and unfortunately they do too.
Four years and it doesn’t get any easier.
We are living life to our fullest, never forgetting and always pushing forward with you by our side.
We love and miss you forever Shane.
CHOP contacted us in the Fall about an article they were writing highlighting the Palliative Care Team (PACT). They asked if we would like to contribute and of course we did.
They had a photographer come out and take pictures of Chase & Ella working with their child life specialist, Kelly. They were making ornaments for Shane’s tree and an additional handprint plate to include Will.
Last week, the finished article came out. It highlights how the PACT team has helped not just our family, but countless others.
I’ve been thinking a lot about Shane and the dreaded month of March as it approaches.
Time has definitely soften the blow this month brings.
This year is a big one for me and I’m feeling particularly anxious about it. I’m thankful to Paul and the kids for recognizing my uneasiness and their attempts to brighten it a bit.
Paul often talks about our trip to Disney in our speeches. It was the one vacation we never wanted to end. This says a lot for two people who can only handle so much “vacation time.”
This picture is of him at Hollywood Studios during that time. You can see how sick he was becoming on the outside. My mind always wanders to how he actually felt on the inside.
We were first invited to attend ASHS Mini-THON in 2015. Shane attended with us. He passed 17 days after we spoke.
It’s been four years, so while some of the students who met him have moved on, there are always new amazing students committed to raising awareness. We thank you for all that you do.
Thank you for allowing us to continue sharing Shane’s story.