About
Shane’s Future Days is a 501(c)(3) volunteer non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395
What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
We are incredibly thankful for our partnership with the Children’s Cancer Therapy Development Institute.
As a parent, you feel helpless when your child is fighting for their life. While, our story did not end the way we wanted to, we are able to continue Shane’s fight and legacy through cc-tdi.
The guidance and compassion we received from Dr. Keller when Shane was with us and the continued support from him and his research team after Shane’s death has been inspiring.
Shane’s tumors have furthered their research endeavors for alveolar rhabdomyosarcoma.
While bittersweet, our family could not think of bigger gift than the gift to continue research to help other families so they can have hope for their children.
This month, if you feel inclined to support childhood cancer awareness, please consider a donation in Shane’s honor to continue the research he sacrificed to begin.
#SFD #HelpShaneFightCancer #ARMSaware #letsdobetter
Today Chase and Ella went back to school for the 2018-2019 school year.
It’s a mixed emotions type of day.
Shane would have joined them both.
Today was supposed to be HIS first day of Kindergarten.
It hurts my heart to know there is a missing person who should be standing beside them, taking his first bus ride and meeting his teacher for the first time.
Would he be like his brother and wear soccer jerseys every day? Would he be like Ella and absolutely love school? What would be his special thing about school?
The days and milestones missed will follow us in this lifetime. Today is one of many.
Cancer took that from us.
#SFD #HelpShaneFightCancer #ARMSaware #letsdobetter
Thank you to everyone who battled the winds and came out to Chase and Ella’s Alex’s Lemonade Stand!
Ella’s outspoken poster advertising and Chase’s lemonade distribution led to them raising close to $600!
Many thanks for another successful year raising awareness and research funds for childhood cancer.
Day 2: The Siblings
Much in our family has changed since Shane took his last breathe on March 30, 2015.
Our focus then and now has always been on Chase and Ella and now Will.
To encourage them to look at the positive things in life. To let them know that bad things can happen to good people, but you don’t have to let it define you.
Studies have shown that the traumatic loss of a sibling can lead to many difficulties in adulthood in terms of physical and mental health. The stats are unnerving.
I will never forget our clinic visit the first time after we returned from Boston. Everyone at CHOP had been briefed on our meeting. They knew, we really KNEW the reality of our situation and the outcome for Shane. Our social worker approached me with care and asked what we needed. I replied: “I need help preparing Chase and Ella.”
We are truly grateful to the child life program at CHOP. Without this program and our amazing child life specialist, I don’t think Chase and Ella would be coping as well as they do.
Grief changes over time. Their grief changes.
Through it all, I am comforted knowing they have support to get through those tough moments and milestones.
