About
Shane’s Future Days is a 501(c)(3) volunteer non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395
What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
Thank you all so much for your kind words and thoughts of Shane. It’s very touching to read your words and to know how impactful Shane has been.
I don’t write these posts because I think I’m strong or wish to be inspirational. The only motivation I have is to bring to light the life of childhood cancer.
Shane fought cancer, like he wasn’t even sick. He was happy, smart and funny. He loved going to the hospital, enjoyed meeting other patients. He made our journey a joyful one. Weird, right? He made everyone around him happy to be with him. For that, we are grateful.
Thank you for remembering Shane with us.
This is a fairly difficult one.
This video is of Shane 18 days before he passed. You can see the toll the radiation took on his head. Those are the remains of radiation burns.This looked GREAT compared to what it looked like a week before. It started as a small red patch at the base of his head. We lathered him up with aquaphor, but nothing seemed to work. It grew and got worse. It looked sore and eventually became infected. He was put on antibiotics and thankfully we found a special lotion used to treat radiation burns.
This was difficult. If it looked like this on the outside, our thoughts always wondered what it looked like on the inside. He smelled for a good while of burnt skin. I can’t even describe the feelings and thoughts Paul and I experienced at this time. All we knew is that this would buy us more time with Shane and for his siblings to be prepared for what was ahead.
He is also wearing his favorite PJ’s. Those are the ones he wore at the end and I sleep with them under my pillow every night.
Day 13:
Shane’s type: alveolar rhabdomyosarcoma: Less than 10% in his age group
“Sometimes a picture is worth a thousand words.”