It’s been awhile since we’ve updated. Life has been busy and it’s hard to believe it’s been 2 weeks since Shane turned one. On the 14th we began a 5 day treatment and completed it in the day hospital as an outpatient. It was successful and I don’t feel we have to be inpatient since Shane had no side effects. We were able to come home and spend time with the family. It is extremely difficult to keep him occupied now that he is mobile. Those few times we have to be inpatient will be spent aimlessly wandering the halls just to keep him busy. This week was a 15 minute treatment and while most of us thought he would need a transfusion, daddy was right and he didn’t! Shane was looking a little pale, but they believe we just use good sun protection (true)! In the past weeks, we’ve been reminded to enjoy each day. Shane is doing great and continues to impress them with how well he is doing. While we thought certain changes might be made to his treatment schedule, we were informed that it’s not in the cards. It was a blow to us, as our anticipation and hopes were crushed…but just for a little bit. We are still moving ahead with the plan, which is working and Shane continues to thrive. We believe in our little guy.

THANK YOU to our family and friends who traveled near and far to help us celebrate Shane’s 1st Birthday. It was a big victory day and we were so grateful and blessed to share it with all of you. Thank you for all the emails of birthday wishes for Shane. We set up a Time Capsule for people to make a prediction, write a wish and/or give advice for his future. I will include those in it.

Tomorrow we start Round 2 of treatment. It’s the week long one. This time we are going to try it outpatient instead of inpatient. He seemed to tolerate it well and who doesn’t like sleeping in their own bed without the constant beeps, and nighttime wake-ups?

Today our little superhero is one. He had a great week and his numbers are higher than mine (probably). This is awesome for a party weekend!

Happy Independence Day!One week from today, Shane will be one. It is so bittersweet. I haven’t posted in awhile because we have been enjoying some family time after his last chemo session. Shane gets two weeks off (no chemo, just blood counts). We went to CHOP last Wednesday and after talking with his doctors, we went home and returned the next day. He had a bone marrow biopsy Thursday and then completed his last 3 drug chemo treatment of Round 1. We left late Friday since he has to wait 24 hours to receive a shot that boosts his white blood cell count.This Wednesday we went in for his blood counts and wound up staying from 9:30 until 4:30 because he needed a blood transfusion. Yes, it takes that long. His big brother came along and we were a bit thrown off by having to stay, but Chase did great. He helped Shane cruise around the clinic and met new friends along the way. He did some canvas painting and participated in CHOP’s new Sibology program. Shane looks great. I admit he was looking pale and we started to call him “powder.” The transfusion brought some color back to his cheeks and more energy, if that is even possible.We got good news from the biopsy and Shane will continue with his same chemotherapy schedule at the same dosage. We are still in discussions with doctors as to any more changes in his treatment for Round 2.