Merry Christmas

Merry Christmas PostIt’s been awhile since I’ve posted and I apologize, it’s been a crazy month. If you are on Facebook and would like to follow Shane’s progress more closely, please “like” and “share” his page to raise awareness at  It has been a more user friendly medium to post updates recently since this month has been a whirlwind.

The Ups and Downs….

After our trip to the ER, we went to clinic on Wednesday. Shane’s attending oncologist had felt the lump on Wednesday and told us it didn’t change much in size. Yep, I had some mixed emotions about this statement, but regardless it is a bit of relief that a tumor didn’t just grow in days and it matches with the scan. Another decent piece of news for the day, the chemo needs time to kick in. It would be too early for us to assume this new protocol is not working. Therefore, we went ahead with that week’s treatment as scheduled.

It was a long day, as this new drug caused issues again. The day hospital nurses were more familiar with it and the time limits and vital signs were lessened. Shane sleep through most of the a day, thanks to Benadryl. He again did not need any anti nausea meds afterwards. He was battling a cold, but loved to wipe his nose. He continued to dance, laugh and play.

On the morning of the 6th, we went back to the ER because Shane was had a seriously high fever. He was diagnosed with RSV and was neutrapenic. We did not go home until Monday, the 8th. On Wednesday, we found out his ANC’s have rebounded and the mass had shrunk. It seems as though the new treatment is working and he was in a good place. He received his treatment, again with no major issues.

We delayed his next treatment until this past Monday. It was an inpatient stay. We did this so that his lowest day after treatment would not fall on Christmas and we could celebrate with our family. Shane did great. He again has a runny nose afterwards and we hope that he will be able to fight it off before his ANCs plummet. We will return to clinic on Monday for his next treatment.

We would like to wish all of you the happiest of holidays and all the best for the New Year. Thank you for all the support you have shown our family and for rallying behind our little guy. He is a fighter and will will fight with him as long as we can.
One day at a time. One foot in front of the other. Enjoying every moment of everyday. It’s the only way we know how.

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