About
Shane’s Future Days is a 501(c)(3) volunteer non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395
What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
Thank you Wicked Cool Toys for an incredible event! The decorations and activities were above and beyond amazing.
For every grieving parent, the start of the holiday season brings on some strong emotions. Thoughts, memories, what-if’s…
While we feel this, Paul and I push forward through the season, sometimes blurred eyed through the tears.
We celebrate the season with Shane by our side.
Today, his tree was completed. Every year we put up our “Shane tree.” We have ornaments of his favorite things, along with new ones we add each year.
This year while on vacation, Paul and I found a glass yellow balloon which reminded us of he storybook “My Yellow Balloon.” Ella found a new Tigger ornament and Chase got his pack of Arsenal ornaments and wanted Shane to have the gold one❤️
Today is Giving Tuesday. I encourage you to make a donation big or small to your favorite charity. Many rely on this time of year to further their endeavors for the next calendar year.
We are currently running a gift card drive to assist families under the care of the Children’s Hospital of Philadelphia’s Palliative Care Team (PACT).
If you are unfamiliar with PACT, this is a team that guides families whose children are terminally ill. More than likely their child is on hospice care, whether at the hospital or in their home.
For us, the PACT team was a separate entity from the oncology unit. They do not get the same funding as the oncology. These doctors, nurses and child care specialists were there to guide us during the most heart wrenching moments of our lives.
They helped us transition from daily hospital visits to (by our own choice) entering our home to check up on Shane and his health. They picked us up when we were told there were no more treatment options for our Shane. They held our hands and guided us towards the unknown.
**The PACT team’s child life specialists hold a special place in our hearts.
They guided our children through healthy grieving. The mental toll the death of a sibling can take is incredible. We are FOREVER grateful for their assistance (and continued guidance) in making sure Chase and Ella grow up knowing how to cope with their ever changing emotions in relation to Shane.
For us, they are a group of incredible people who day after day assist families who have to face the death of a loved one. They bring smiles to sibling’s face and give those children the one on one attention they need to get through some very rough times. They allow their patients to forget for a moment that they are sick. Most importantly they provide a safe space for these children and siblings to talk about their feelings and teach them had to manage them.
So, if you are inclined to give today. Any money donated today will go towards the PACT team to assist their gift card drive. If you would rather mail in a gift card, please do so to:
Shane’s Future Days
P.O. Box 168
Abington, PA 19001
To those of you who came to shop on Shopping for a Cause event at Kendra Scott in Ardmore and those who called in phone orders.
It was a great shopping day!
Also, “Thank You!” to those of you who sent gift cards for our CHOP PACT team gift card drive! We received some even before Halloween! 🙌🏻
There is plenty of time to mail those gift cards in too! We are collecting until December 21st.
Also, we have been busy starting our holiday shopping for our adoptive families.
This year we have four families who have a child with the same type of cancer as Shane, rhabdomyosarcoma.
Additionally we are assisting two more families through the PACT team.
We hope you get into the holiday spirit and help us spread some joy to families who could really use the support this holiday season ❤️
