About
Shane’s Future Days is a 501(c)(3) volunteer non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395
What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
Research is the key. We are so grateful for our partnership and that Shane’s tumors cells have assisted in pushing forward a clinical trial.
It’s honestly the best gift we ever gave and one we never had to think twice about.
via: https://www.facebook.com/thechildhoodcancerproject/photos/a.460857917581173/800619860271642/?type=3&theater
The Childhood Cancer Project is proud to support the work of Dr. Charles Keller and The Children’s Cancer Therapy Development Institute’s Legacy Autopsy program.
The Legacy Autopsy was created to enable parents of children with cancer to donate tumor tissue to research. The cc-TDI team and The Childhood Cancer Project believe that this kind of research will be field-changing, especially for rare childhood cancers for which cell lines and mouse models do not exist, and for which functional studies have never before been performed.
“The decision to donate our son’s tumors to research continues to give us hope. It allows us to fight for our son and so many others until a cure is found.”
— Shane’s parents
A huge thank you to everyone who has supported The Childhood Cancer Project, without you we couldn’t support so many families and the cc-TDI Legacy Autopsy Program.
For a bereaved parent, each new year draws us further from the one we lost.
2019 will mark 4 years since Shane passed. It’s heartbreaking to realize we have been living without him for that long.
But, we move forward with him by our side.
He is remembered each and every day by us. I know Paul and I have done the best for our children when they can openly speak of their brother, laugh at the memories, cry at the moments lost, but always feel his love and presence within them and around them.
We want them to live forward with Shane as their guide.
They are proud of the legacy Shane has left. His tumors have brought forth amazing research and we have assisted in research and helped families faced with similar circumstances. All at our own pace. We balance our life, our family and Shane’s legacy in a healthy balance.
Thank you for continuing Shane’s legacy with us. May 2019 bring more remarkable movements forward in the fight against alveolar rhabdomyosarcoma.
Cheers!
Thank you to Jennie Rose, Amanda Seguinot, Lorac Nedgo and Deborah Pann for your generous donations.
The Target Cuthbert Blvd made an incredible $500 gift card donation to the CHOP PACT team on behalf of Shane’s Future Days. Thank you for supporting the PACT families and issuing these gift cards in Shane’s name❤️
We had an incredible holiday gift drive season for 2018. None of this would be possible without all of you. Thank you for your support and remembering our sweet Shane.
Merry Christmas and Happy New Year you you and yours!
Love,
Paul, Michele, Chase, Ella, Shane and Will
The 21st is almost here and I wanted to pause and say THANK YOU to those who helped Shane’s Future Days brighten families affected by childhood cancer this holiday season.
-Our CHOP PACT team gift card drive and Holiday Gift Drive
Not only were we able to donate over $500 in gift cards,
we also helped a couple families through the PACT team
with all their holiday gifts
*Thank you to Kimberly Parker Cox, Bethany Parker,
Samantha Kane, Hope Anne Marie, Helene Metzgar, Roxanne Mayoros-Blasy and many more not on FB.
**A special thank you to the Falcone (Liz Rauch) family for buying gifts for specific members of our PACT families.
-Thank you to Wicked Cool Toys for your proceeds donation from your amazing 1st annual Santa’s Workshop event! We truly appreciate your efforts in putting on an outstanding event and supporting our families this holiday season.
-Four years ago, we moved in the middle of the most difficult part of our lives. It was crazy, overwhelming and before the move actually happened, we had no idea what our future held with Shane. We went into it before our trip to Boston.
We closed on 12/6/14 and that night Shane wound up at CHOP’s ER. We were quarantined for almost a week since he had RSV. We moved in 12/19/14 and on 12/22/14 I was back at CHOP with Shane for treatment. We came home on Christmas Eve. Somehow, every child’s room was set up as well as most of the house, along with 3 Christmas trees up and fully decorated.
It was a whirlwind with so much anxiety about the future. Our main goal was to get Shane into his new house and for him to live and enjoy it.
Now that….is holiday stress
