Shane’s Future Days is a 501(c)(3) non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395 .
Wow, what a day! Thanks to the article on Philly.com and its writer Lauren Mennen, Shane has a voice. It outlines his cancer and the lack of funding for pediatric cancer so well and we couldn’t be more pleased. The response from the readers has been amazing too, so thank you. Thank you again to all those who donated. We are still slowly getting back to each of you. We sincerely appreciate your support and your words of encouragement! We are on day 2 of our 5 day treatment. Yesterday was extremely long and draining. There were so many people in clinic yesterday and no beds were available, so we began his treatment as an outpatient. We arrived at 9:30 and left at 5:30. It’s like a full time job. Shane did amazing, but he had some side effects to the treatment. Today, they admitted us so they can control the effects and keep him hydrated. This chemo drug puts children Shane’s age in a grey area because while the side effects can be managed, he is still so little that it can become serious. With that said, he is being managed well and is doing it with a smile! Chase came to check things out since he has had a lot of questions and anxiety about what is happening with Shane. I wish I had a picture of the two of them, but I was honestly just enjoying the love on each other’s faces. Chase did awesome and I know Shane was thrilled to have him here. We will be here until Friday and then back to “normal” life!
I know this is going to come back to bite me, but today was a relatively fast day. Shane’s counts are back up, he gained 6.6 ounces and grew a half inch! He continues to tolerate his treatments and still has some hair…for now.
Happy Easter to those who celebrate! Shane enjoyed his First Easter watching his siblings hunt for eggs and their baskets, while he sifted through his own basket. We spent the weekend enjoying the company of our family and taking advantage of the beautiful weather. Tomorrow we head to CHOP to begin a week long treatment. Fingers crossed his counts are good and we can get a bed!
Poppy and I took Shane for his 3rd treatment today. It was a LONG 6 hour day . The doctors agreed the tumor is smaller, so that was good to hear. It coincides with Shane’s behavior as he is playing more and is in even better spirits (if you imagine that).The reason our day was longer is because his hemoglobin was low and he needed a transfusion. The doctors expected this, so it wasn’t concerning to them. It took an extra 2 hours, but he did awesome!Next week we will be admitted since his treatment is 5 days long .