Shane’s Future Days is a 501(c)(3) non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395 .
Poppy and I took Shane for his 3rd treatment today. It was a LONG 6 hour day . The doctors agreed the tumor is smaller, so that was good to hear. It coincides with Shane’s behavior as he is playing more and is in even better spirits (if you imagine that).The reason our day was longer is because his hemoglobin was low and he needed a transfusion. The doctors expected this, so it wasn’t concerning to them. It took an extra 2 hours, but he did awesome!Next week we will be admitted since his treatment is 5 days long .
Thank you to our family, friends-from childhood, high school, college, work, neighbors, friends of our friends, friends of our family, those whom we have never met and to those who wish to remain anonymous. We are working on responding to everyone, but before time gets away from us, we wanted to acknowledge your donation and let you know how much we appreciate it.
“Those who make compassion an essential part of their lives find the joy of life. Kindness deepens the spirit and produces rewards that cannot be completely explained in words. It is an experience more powerful than words. To become acquainted with kindness one must be prepared to learn new things and feel new feelings. Kindness is more than a philosophy of the mind. It is a philosophy of the spirit.” –
-Robert J. Furey
After Shane’s diagnosis, the doctors were adamant about us trying to lead normal lives. While, it’s not easy to wake every morning and realize that this nightmare is your life, we are trying out best. So, today we spent the morning watching Chase’s first baseball game of the season and took Ella to her dance class. That’s us being normal, even if it’s just for a couple of hours. At least the kids will sleep well!