About
Shane’s Future Days is a 501(c)(3) volunteer non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395
What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
I know this is going to come back to bite me, but today was a relatively fast day. Shane’s counts are back up, he gained 6.6 ounces and grew a half inch! He continues to tolerate his treatments and still has some hair…for now.
Happy Easter to those who celebrate! Shane enjoyed his First Easter watching his siblings hunt for eggs and their baskets, while he sifted through his own basket. We spent the weekend enjoying the company of our family and taking advantage of the beautiful weather. Tomorrow we head to CHOP to begin a week long treatment. Fingers crossed his counts are good and we can get a bed!
Poppy and I took Shane for his 3rd treatment today. It was a LONG 6 hour day . The doctors agreed the tumor is smaller, so that was good to hear. It coincides with Shane’s behavior as he is playing more and is in even better spirits (if you imagine that).The reason our day was longer is because his hemoglobin was low and he needed a transfusion. The doctors expected this, so it wasn’t concerning to them. It took an extra 2 hours, but he did awesome!Next week we will be admitted since his treatment is 5 days long .
Words cannot express how thankful we are for all support and donations we have received for Shane. Thank you, thank you, thank you!
Thank you to our family, friends-from childhood, high school, college, work, neighbors, friends of our friends, friends of our family, those whom we have never met and to those who wish to remain anonymous. We are working on responding to everyone, but before time gets away from us, we wanted to acknowledge your donation and let you know how much we appreciate it.
“Those who make compassion an essential part of their lives find the joy of life. Kindness deepens the spirit and produces rewards that cannot be completely explained in words. It is an experience more powerful than words. To become acquainted with kindness one must be prepared to learn new things and feel new feelings. Kindness is more than a philosophy of the mind. It is a philosophy of the spirit.” –
-Robert J. Furey