Speechless PostWords cannot express how thankful we are for all support and donations we have received for Shane. Thank you, thank you, thank you!

Thank you to our family, friends-from childhood, high school, college, work, neighbors, friends of our friends, friends of our family, those whom we have never met and to those who wish to remain anonymous. We are working on responding to everyone, but before time gets away from us, we wanted to acknowledge your donation and let you know how much we appreciate it.

“Those who make compassion an essential part of their lives find the joy of life. Kindness deepens the spirit and produces rewards that cannot be completely explained in words. It is an experience more powerful than words. To become acquainted with kindness one must be prepared to learn new things and feel new feelings. Kindness is more than a philosophy of the mind. It is a philosophy of the spirit.” –
-Robert J. Furey

Be Normal PostAfter Shane’s diagnosis, the doctors were adamant about us trying to lead normal lives. While, it’s not easy to wake every morning and realize that this nightmare is your life, we are trying out best. So, today we spent the morning watching Chase’s first baseball game of the season and took Ella to her dance class. That’s us being normal, even if it’s just for a couple of hours. At least the kids will sleep well!

Cherishing Every Moment PostToday Shane is 9 months old! He is doing fantastic, except for the teething. He spent the day going to a nature reserve class with his sister Ella.

National Siblings Day PostPaul and I weren’t the only ones affected by Shane’s diagnosis. Chase (6) and Ella (3) have had their lives changed forever and they don’t even know or understand it completely yet. When we found out I was pregnant, Chase knew it was a boy and affectionately called him “razor mouth” after a shark. Hence, the nursery is beach themed. Unfortunately, that nickname got replaced by “Shane the brain” via Ella and “Jar Jar” from our Star Wars obsessed Chase.

All I ever wanted was a family where my children loved and cheered each other on, no matter what life threw at them. So far, so good.