What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
A special THANK YOU to Morey’s Piers & Beachfront Water Parks for their generous donation of 2 Water Park passes. We appreciate your participation in our 5th annual COL event and for supporting childhood cancer research and awareness.
The Philadelphia Wings have generously donated two tickets to any next year’s home game! Thank you for your support of our 5th annual COL!
Thank you for your donation of TWO American Girl dolls for this year’s 5th annual COL! We greatly appreciate your support!
Our 5th annual Celebration of Life event is coming up! June 15, 2019 from 1-6 at VE Club in Warminster, PA We are working out the fine details as this year has proved to be challenging to plan. We won’t let that stand in the way of us trying to honor our son Shane,, Read More
I remember 5 years ago today and Shane had just finished his first round of chemo. We were inpatient and it was the first time I had to spend time away from the kids for Shane’s cancer journey. This picture is the one we took when Shane (and I) finally came home. We were, Read More
Four years and it doesn’t get any easier. We are living life to our fullest, never forgetting and always pushing forward with you by our side. We love and miss you forever Shane.
CHOP contacted us in the Fall about an article they were writing highlighting the Palliative Care Team (PACT). They asked if we would like to contribute and of course we did. They had a photographer come out and take pictures of Chase & Ella working with their child life specialist, Kelly. They were making, Read More
I’ve been thinking a lot about Shane and the dreaded month of March as it approaches. Time has definitely soften the blow this month brings. This year is a big one for me and I’m feeling particularly anxious about it. I’m thankful to Paul and the kids for recognizing my uneasiness and their attempts, Read More
We were first invited to attend ASHS Mini-THON in 2015. Shane attended with us. He passed 17 days after we spoke. It’s been four years, so while some of the students who met him have moved on, there are always new amazing students committed to raising awareness. We thank you for all that you, Read More
“Time of year” is continuous and cyclical. Its grief squeezing the breath out of me. It’s mostly hidden, but ever present. The holidays are over and time slows a bit. I feel like I’m drowning in thoughts, memories, all painful and wishful. I worry over things I can’t control. Hello grief. Hello anxiety. Thanks, Read More
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