About
Shane’s Future Days is a 501(c)(3) volunteer non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395
What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
Most nights, I am thankful for sleep. Today, I woke up early. I looked at the clock, even though I didn’t really have to know what time it was. It was 3:00 am. Of course, it was. Today, is Shane’s 3rd birthday. That little stinker.
Dear Shane,
On the day you were born, our family was complete. You were beautiful and perfect. Your birth was the smoothest of the three. I felt so much love on that day and every day I had with you.
One birthday is all we got to celebrate with you. Looking at pictures and seeing how happy and healthy you looked warms my heart. Your spirit comes through in those images. I can hear your sequels of joy. Feel your love.
We celebrate you today.
Chase and Ella were left in charge of planning your big day. They had so many ideas and plans. It seemed fitting to let them be in charge. Ella’s master plan is to tie your favorite toys onto balloons and send them up to you in heaven. Chase immediately squashed this idea, as it’s not “logically” possible. A few days later, he came up to me and said, “Mom, you know Ella’s balloon idea? It’s really a fantastic idea.”
Happy Birthday son. We miss you beyond words and thoughts.
Love,
Mama
Sometimes after big events, it knocks the wind out of you. The months leading up to them, you are hustling and working around your everyday life. The day comes and then BAM. You need some time to decompress. Well, I guess we took that time to decompress and now we start again.
Chase is busy planning his second annual Chase and Shane’s Future Days Alex’s Lemonade Stand down the shore. He was so proud (us too!) of his stand last year, that he wished to do it again. This is Chase’s way to honor the memory of his brother, Shane and our family’s good friend, Antonio.
The planning for this event comes at a time tender to our hearts. Shane’s 3rd birthday is approaching in 2 days and the one-year anniversary of Antonio’s passing is in 6 days.
The paths of these two are intertwined. Forever. We are comforted knowing that Shane has a big brother up there watching out for him as well as helping him pull jokes on us down here.
Paul and I are also planning on visiting Dana Farber in Boston. We traveled there with Shane for a second opinion to make sure we were doing the very best we could in terms of his treatment. The money raised from our #tailgateforgood will go there.
We just wanted to update everyone on our continued efforts. There will be more details coming soon. Thank you for the support!
We are proud to announce that our second annual Celebration of Life raised $10,000! We had less people attend, but raised the same amount. Thank you for making Shane’s Future Days a philanthropic priority. We are incredibly humbled and overjoyed to be able to continue our mission.
We have no doubt Shane is smiling down on us.
Shane, we do this in your memory and for children like you. We need to keep fighting for a cure.
The 2nd annual Celebration of Life was wonderful and successful! We are so thankful to all the people and families who came out on a beautiful day and supported Shane’s Future Days and our mission to assist funding for rare pediatric cancer research and families going through a similar journey.
We are especially thankful for our friends for all their volunteer efforts. We couldn’t do this without you, Thank you.
This week we are taking a much needed rest. We will announce the amount raised as soon as we settled our costs for the event.
So far, it looks good!
