About
Shane’s Future Days is a 501(c)(3) volunteer non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395
What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
Our goal as parents are not only to raise kind and loving children, but for them to realize the world is bigger than themselves.
Chase wanted to do an Alex’s Lemonade Stand ever since Shane was diagnosed. Last year, he successfully raised over $1400.
He enjoyed doing it so much, he committed to doing it again this year.
On Saturday, August 13th, he held a stand in memory of Shane and our friend Antonio. He wants the money to go to CHOP (The Children’s Hospital of Philadelphia) for sarcoma research. Shane and Antonio both had a sarcoma cancer and like us, he realizes the importance of research.
He is proud to tell you that he raised: $523.65 and along with his online donations, the total is $1,548.65!
On Thursday, August 4, 2016, we donated the money raised from our Pearl Jam #tailgate4good with the Phan Cave to Dana Farber Cancer Center. The money will go towards their genetic research of rhabdomyosarcoma in memory of Baby Shane.
A lot of memories came rushing back as we pulled into the parking garage. It was there, that we came to the realization that not much more could be done for Shane in terms of treatment options. We appreciated all that was said during our meeting. It was very helpful to us as we moved forward in our journey. It was important to us to relay that back to them.
The check presentation was held outside of the Jimmy Fund oncology clinic. Sadly, the clinic was full of children. It was a difficult moment for us. However, this is why we do all of this. Without money for research, these clinics will always be filled. In terms of certain types of cancers, it’s almost up to the parents to go out and seek funding for better treatment options in hopes of a cure.
In continuing with our efforts to support the Children’s Cancer Therapy Development Institute, we are proud to announce that we will be donating $10,000 towards their ARMS research project.
Paul and I will not be able to attend the pediatric nano course this year. We hope to travel out to their new facilitates in Portland, OR next year with the children.
