Shane’s Future Days is a 501(c)(3) volunteer non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395
Paul explained at our second annual Celebration of Life where exactly the money we raised goes. Here is the speech he gave:
Two weeks ago tomorrow, Ella had her tonsils and adenoids removed. It was deemed necessary and so we headed back into a medical setting.
Everything went well. It was all a familiar in terms of pre-surgery and post-surgery. The whole process brought back a lot of memories for Paul and I.
It also brought them back to Ella. She was brave and did very well. The next day, however, I found her in her room hysterically crying. I asked what was wrong and she just turned and looked at me and said “Shaney.” “I miss my Shaney so much.” We talked it through which is what we found works best for our kids.
Around the same time, I saw a post about a local 9th grade boy who was fighting cancer. It was his birthday and he was asking for people to donate toys to CHOP’s oncology unit. How incredibly selfless and an amazing idea! It’s not the first time I’ve witnessed this about children who have cancer, but I’m always amazed how they put other people ahead of themselves.
I told Ella about him and we took off on a shopping spree. She made sure to get the things she remembered most about her time spent at CHOP. Most importantly, she picked out a special toy that she thought Shane would love the most. We delivered the toys to him to distribute and she was one proud sister.
In our family, we celebrate birthday weeks.
Monday, Jully 11th, was Shane’s 3rd birthday. Chase and Ella did a wonderful job planning our day.
It was full of soccer, the zoo, cake and a sunset balloon release. It was busy, which is how we like it. The rest of the week was full of soccer and friends. It ended with a family trip down the beach. The whole Metzgar family was together in Shane’s favorite place.
I wish I could say it gets easier, but really it doesn’t. The feelings get softer, but the pain runs deep. Paul and I listen as Chase and Ella converse. Their conversations are ones that at their age, we never had. We either weren’t exposed to the reality of death or weren’t mature enough to emotionally handle it. These two are truly wise beyond their years.
Thank you for all the warm wishes to Shane and our family. We truly appreciate you remembering our sweet little man!
Side note: I grabbed three candles to light Shane’s cake. Yellow, red and green. We sang “Happy Birthday” and after blowing them out, one candle re-lit. It was green, Shane’s favorite color.
Out of a pack of 28, only 8 were re-lighting. The kids got a kick out of it.
Most nights, I am thankful for sleep. Today, I woke up early. I looked at the clock, even though I didn’t really have to know what time it was. It was 3:00 am. Of course, it was. Today, is Shane’s 3rd birthday. That little stinker.
On the day you were born, our family was complete. You were beautiful and perfect. Your birth was the smoothest of the three. I felt so much love on that day and every day I had with you.
One birthday is all we got to celebrate with you. Looking at pictures and seeing how happy and healthy you looked warms my heart. Your spirit comes through in those images. I can hear your sequels of joy. Feel your love.
We celebrate you today.
Chase and Ella were left in charge of planning your big day. They had so many ideas and plans. It seemed fitting to let them be in charge. Ella’s master plan is to tie your favorite toys onto balloons and send them up to you in heaven. Chase immediately squashed this idea, as it’s not “logically” possible. A few days later, he came up to me and said, “Mom, you know Ella’s balloon idea? It’s really a fantastic idea.”
Happy Birthday son. We miss you beyond words and thoughts.
Love,
Mama