About
Shane’s Future Days is a 501(c)(3) volunteer non-profit foundation whose mission is to raise awareness, research funds and assist families currently battling alveolar rhabdomyosarcoma and other high risk childhood cancers. EIN: 47-2556395
What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
Sometimes after big events, it knocks the wind out of you. The months leading up to them, you are hustling and working around your everyday life. The day comes and then BAM. You need some time to decompress. Well, I guess we took that time to decompress and now we start again.
Chase is busy planning his second annual Chase and Shane’s Future Days Alex’s Lemonade Stand down the shore. He was so proud (us too!) of his stand last year, that he wished to do it again. This is Chase’s way to honor the memory of his brother, Shane and our family’s good friend, Antonio.
The planning for this event comes at a time tender to our hearts. Shane’s 3rd birthday is approaching in 2 days and the one-year anniversary of Antonio’s passing is in 6 days.
The paths of these two are intertwined. Forever. We are comforted knowing that Shane has a big brother up there watching out for him as well as helping him pull jokes on us down here.
Paul and I are also planning on visiting Dana Farber in Boston. We traveled there with Shane for a second opinion to make sure we were doing the very best we could in terms of his treatment. The money raised from our #tailgateforgood will go there.
We just wanted to update everyone on our continued efforts. There will be more details coming soon. Thank you for the support!
We are proud to announce that our second annual Celebration of Life raised $10,000! We had less people attend, but raised the same amount. Thank you for making Shane’s Future Days a philanthropic priority. We are incredibly humbled and overjoyed to be able to continue our mission.
We have no doubt Shane is smiling down on us.
Shane, we do this in your memory and for children like you. We need to keep fighting for a cure.
The 2nd annual Celebration of Life was wonderful and successful! We are so thankful to all the people and families who came out on a beautiful day and supported Shane’s Future Days and our mission to assist funding for rare pediatric cancer research and families going through a similar journey.
We are especially thankful for our friends for all their volunteer efforts. We couldn’t do this without you, Thank you.
This week we are taking a much needed rest. We will announce the amount raised as soon as we settled our costs for the event.
So far, it looks good!
Today is a day to recognize those children who lost their battle and are currently fighting rare childhood cancers. Today, is our second annual Celebration of Life event at VE soccer club in Warminster, PA.
We began acquiring donations as early as December 2015. The generous Park Hopper passes granted to us by the Walt Disney Company set the tone for what an amazing event this will be. Thank you to all the companies, businesses and sports teams who kindly and generously donated to our event.
- Southwest Airlines, Dyson, Whole Foods Philadelphia, Hilton at Penn’s Landing, Sunset World, Elite Island Resorts, Mario Lemieux Foundation, Bounce U Horsham & Langhorne, Rebounderz, Sky Zone, Flyers Skate Zone, Philadelphia Phillies, Philadelphia Flyers, Philadelphia Union, Philadelphia 76ers, Upper Dublin Golf Club, Abington Club, JC Melrose Country Club, Planet Fitness, Bibou BYOB, Sbraga, Molly Malloy’s, Walnut Street Theatre, Adventure Aquarium, The Philadelphia Zoo, Longwood Gardens, Philadelphia Art Museum, Riverhorse Brewing Co., Victory Brewing Company, Panera Bread, AMC, Kaleen Wolfe designs, Heather Milano Photography, In the Mix events, Jules Thin Crust Pizza, Painting with a Twist Jenkintown, Club Tabby, Chase’s Hop Shop, Jenkintown Hot Yoga, Burholme Golf James Minerva Hair Salon and independent consultant donations from Plexus, Arbonne, Usborne, LuLaRoe, Norwex and Origami Owl.
Events like this enable Shane’s Future Days to provide research funds to assist with purchasing of laboratory equipment, as well as funding pediatric preclinical cancer trials. It also helps us support the Children’s Hospital of Philadelphia’s Palliative Care Team who provide the world’s best care to patients with currently incurable childhood cancers. Additionally and most importantly, it permits us to expand our footprint, enabling us to provide for families affected by rare childhood cancers with support that they need along their journey.
So, today we celebrate and remember our amazing little man who taught us all to live life to the fullest. Shane, we miss you.