Reflection

 

 

 

 

Well, it’s March and being snowed in has given me more than enough time to reflect.

Thank you all for your comments on my recent post. I post as a healthy way to release my thoughts (I journal too). I do think that many of you who have followed our journey are curious and afraid to ask questions, so sometimes I feel like writing my entries here may help with that.

Some of you may be curious as to why March has such a significant meaning to us.
Did you know that the day Shane passed was the same day I met Paul? Yep, March 30, 2001 we met in Washington D.C.. That same day, 14 years later we would lose our 3rd child.

Shane was baptized March 2, 2014. His lumps were detected March 4, 2014. Our appointments with the pediatrician and CHOP general surgeon were March 5, 2014 and March 7, 2014, respectively.

Our whole rollercoaster journey through CHOP was in March 2014. His diagnosis day was March 28, 2014 after his biopsy March 26, 2014.

We fought. We had a blessed cancer journey with little to no side effects. However, on March 6, 2015 (my birthday) we had our last appointment at CHOP as a regular oncology patient.

Shane’s tumors continued to grow, even after 14 days of radiation and oral chemo treatments. There were no more treatment options left (legally).

What that really means…is as a parent you need to make the decision of whether you are treating your child for you versus impacting the quality of life for your child.

On that day, we left with Shane on hospice care. We were transitioned from regular oncology to the Palliative Care Team. As you know, the PACT team left a significant mark on us. Their child life specialist helped Chase and Ella through so much and we are forever grateful. This is why we help with their funding. To help other families through the transition and bereavement.

It’s also the day I contacted Dr. Keller about donating Shane’s tumors. To us, this was a way to fight even more. While we knew Shane wouldn’t make it, our wish was that no other family or child would have to go through what we did. I wish more people thought about tumor donation and the significant impact it has on research and the future!

So, that’s the synopsis of why March is so difficult. However, life is full of coincidences and dates. I am forever grateful to be Shane’s Mom. The dates are ultimately insignificant to the love and life that is in the present.

 

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