Will turned 8 months old this week. Shane was 8 months when he was diagnosed with stage 4 alveolar rhabdomyosarcoma. It’s a mouthful and makes my head spin. Paul and I have always said to each other that this journey with Will is going to be a cautious one. We will not be relaxed, Read More
Don’t forget to register for tickets on our website. Those who purchase tickets ahead of time save money and will be entered into a raffle to win a YETI prize pack! Lots of great items to raise money for childhood cancer research and programs!
When your child is diagnosed with cancer, you feel isolated from everyone. It’s not necessarily that people make you feel like that, well some do, but you just are. You are that, “cancer family.” The childhood cancer community is similar to normal society. People who have nothing in common, find commonality and friendship because, Read More
On March 30, 2015 we said goodbye to Shane. This day is never easy for us. Never is, and never will be. Since Shane passed, March has been a tough month for us, but we move forward. His life put life into perspective. You truly realize what’s important. We are so thankful he was, Read More
Today was the first day of the kid’s spring break. It was also a perfect day for their child life specialist from CHOP’s PACT team to visit. Did you know that March is child life specialist month? These positions are fully funded by donations. They are incredibly important to the emotional well being of, Read More
March 28, 2014 We received Shane’s official diagnosis. We waited all day to hear from the doctors. There was a weight on us. Our baby had cancer, but as we mentioned before, when we left the hospital two days before, the doctors said it was treatable. We were optimistic. At 4pm, my phone rang., Read More
Well, it’s March and being snowed in has given me more than enough time to reflect. Thank you all for your comments on my recent post. I post as a healthy way to release my thoughts (I journal too). I do think that many of you who have followed our, Read More
Tomorrow is March. I don’t have to look at a calendar to know, I can feel it. The exhaustion, avoidance, sadness and dread has already taken over my body. Paul feels it too. He asked me last night why he was so tired. I just replied, “it’s almost March.” Grief is personal, random and, Read More
Tomorrow is Ella’s 7th birthday. Those of you who have been with us for a while, may remember that Shane and I had to stay overnight the night before Ella’s 4th birthday (yes, it’s really been 3 years already) at CHOP. Shane had to have G-tube surgery in order to receive a new chemo, Read More
Philadelphia Eagles are headed to the Super Bowl!