What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
Celebration of Life planning is in full swing! Thank you to those who reached out and offered to make or donate baskets for our raffle and/or silent auction! We have really amazing stuff! Thank you to our newest donors! Sunset World (Cancun stay), H2Oooohh Indoor Water Park (2 waterpark passes), Napa Valley Wine Train, Read More
Today, we traveled to speak at Spring Grove Mini-THON. Paul attended PSU with their advisor. There were 15 families there affected by childhood cancer. It was an incredible event and we were humbled to be apart of it. We met some amazing fighters! 2017 SG Mini-THON raised $102,087.18!!! FTK Thank you for having us!
Our Third annual Celebration of Life will be held June 17, 2017! We already have amazing donation sponsors who have contributed to help make this year’s event our best yet! Special thanks to Tieks by Gavrieli for their generous gift card donation, Southwest Airlines for 4 one-way flight donations and Elite Island Resortsfor donating Caribbean vacations valued at over, Read More
Shane is always on our minds, but today is just one of those days when he’s particularly prominent. This week we will be announcing the date for our Third Annual Celebration of Life! We’ve been working hard on securing amazing prizes once again! I wanted to share this video created by The Children’s Cancer, Read More
On February 3, 2017, our family was wecomed back to speak at ASHS’s Mini-THON. It’s an event we look forward to every year. Three years ago, we spoke with Baby Shane. It was when he took a turn for the worse, but the support and kindness shared by these students and community helped, Read More
Happy New Year! Ringing in the New Year this year was a bit different from last. The loss of a chid has no reference. It’s indescribable on so many levels. To say good-bye to 2015 was our final good-bye to Shane. I remember having so much anxiety during the holidays (still do) and the, Read More
“Christmas brings family and friends together, it helps us appreciate the love in our lives we can often take for granted. May the true meaning of the holiday season fill your heart and home with many blessings.” * Special thanks to Heather Milano Photography for creating these amazing images for us.
It was a busy weekend filled with soccer and celebrating the season. Today we followed one of our family’s traditions of taking the kids downtown to see Santa at Dickens Village in center city. We have been doing this since Chase’s 1st Christmas and have continued it with Ella and Shane and even now., Read More
Shane’s Future Days was proud to support a team (The ’07 VE Gunners) in the Storm the Heavens Futsal Tournament We were proud to be apart of a great cause! The Gunners were 2nd after their friends the Fishtown Rowdies. Keeping Phil in our prayers #stormtheheavens
All the gifts are in & wrapped! We dropped off our gifts to The Breathing Room Foundation yesterday. The rest (pictured) will be delivered early next week. 🎅🏻 We got everything from an American Girl doll, Hatchimal (special thanks to some awesome friends!) to coats, boots, diapers, gift cards and many other clothing and toy items! Thank, Read More
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