What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
Our magic number for CHOP was 101.4. Once Shane was diagnosed and we had our “team cancer meeting,” they tell you you need to attend a cancer 101 course through the hospital. Whoever was going to be involved in Shane’s care was urged to attend. The most important topic of that meeting was the, Read More
I’ve been using September to raise awareness for childhood cancer, as it’s the “designated” month for childhood cancer. In reality, everyday is a day for awareness when you have gone through what we have. I look around the stores and besides seeing Halloween decorations out before school started, I’m now seeing Christmas themes. If, Read More
Thank you all so much for your kind words and thoughts of Shane. It’s very touching to read your words and to know how impactful Shane has been. I don’t write these posts because I think I’m strong or wish to be inspirational. The only motivation I have is to bring to light the, Read More
Day 13: Shane’s type: alveolar rhabdomyosarcoma: Less than 10% in his age group
No truer words to describe children with cancer. Shane, you are our hero.
Today, I got by “with a little help from my friends.” It’s Back to School day for Chase and Ella. It’s a difficult day on many levels. First, Ella entered Kindergarten. This alone saddens me. Where have the years gone when my little shadow was playing school and trying to read over her brother’s, Read More
I’ve been seeing this over the last couple days and it brought me back. This was us with Shane during his entire treatment. We had gloves in our diaper bag, at my in-laws, in his room…everywhere. As I mentioned before, we were incredibly blessed that Shane took to his chemo treatments so well. He, Read More
Day 2: Last year I approached September as a cleansing of thoughts in terms of our cancer journey with Shane. There are certain topics as we move forward that come to mind. These will come in time within the month. Some are difficult and others uplifting. Heading into the holiday weekend, I will begin, Read More
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