What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
The Holidays are here and today is “Giving Tuesday.” Life is short. “Things” just accumulate. Why not make a difference to those affected by rare childhood cancer? After Shane passed, our approach to the holidays completely changed for our children. The list is shorter and follows the: want, need, wear, read, share, experience and, Read More
A friend of the family dedicated this brick to Shane. A little piece of him is in NEPA. On our way home from spending the holiday in my hometown, we stopped and saw it in person. It was touching, a bit sad and a reminder that indeed our son’s star does shine brightly in, Read More
I know we have been quiet, but we assure you… we have been busy! This holiday season we are thankful to be able to assist quite a few families this year. We have completed two families wish lists so far! One was a single parent with one child and the other was a family, Read More
From Paul: Last night we were lucky enough to see Temple of the Dog at the Tower, thanks to a friend. This band was formed as a tribute when a band member passed away from a heroin OD. Tonight TOTD opened with Say Hello to Heaven. While this song is about losing a, Read More
Tonight, we had the honor of attending The Frances Foundations’s Glitter in Gold gala. The Frances Foundation provides assistance to children and families from NJ and NY battling childhood cancer. They were huge supporters of our good friend’s, the Santos Family. Tonight, they continued to honor Antonio.
September 30: Today is the last day of childhood cancer awareness month. For families who have been touched by childhood cancer, it never ends….even in death. This month,1,290 children have been diagnosed with cancer and approximately 163 died this month from cancer. Our mission for Shane’s Future Days is to continue to raise money for research, Read More
Day 25: Two years ago, we gathered by the Swann Fountain on the Ben Franklin Parkway surrounded by many family and friends. It was the CHOP Parkway Walk/Run benefiting the oncology unit. It was an amazing experience. Shane was doing well and we were so full of hope and determination. It was perfect and, Read More
I was thinking about what to write about today and Ella reminded me of what it should be about. Children grieve too. I’ve mentioned this. The problem is people don’t always listen. The truth is my kids have been through more than I ever wanted them to. What I’m learning about both of them, Read More
Paul and I took the kids to the Phillies game tonight. This was the first time I was back to the Hall of Fame Club since Shane was there. He went twice. First time, he couldn’t walk yet, but the second he was strutting around the HOF club like he owned it! He loved, Read More
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