Thank you for your comments, emails, texts and calls. We are overwhelmed by the amount of support and touched that our little guy has won so many of your hearts. Tomorrow we head back to CHOP for Week 13, the end of Round 1 of treatments. We will be inpatient since it’s a three, Read More

12 weeks. That’s how far we’ve made it. Nothing has changed. He is still smiling, not sleeping, never been sick and no fever. All the while, toxins are being pumped into his body, killing off these cells that have thrown our lives into a tailspin. Tomorrow is the day we find out where we, Read More

Yesterday was not only chemo day, but the day Shane turned 11 months old. Wow, our little man will be a year in 30 days. It brings tears to my eyes thinking about all he’s endured in his short life. From the outside looking in, you would never know he is sick. Even now after almost, Read More

I wanted to say thank you to all that made it out last night. It was an incredible event, with an amazing turnout. I also want to say thank you again to all that have donated on the website. We are so thankful for all of the support. This was a transcript of my, Read More

Today is the day of the fundraiser. Both Paul and I are anxious and nervous. The social worker came to talk to me while inpatient this week and told me it would be a difficult day. She wasn’t kidding.Throughout all of this, we’ve been praised at the hospital and in general on how well, Read More

Shane had a busy week last week. He went to his first Phillies game and to the beach to play in the sand.We are doing what we normally would, as long as he is feeling and looking good. He loved both! While we didn’t actually see the game because of weather (game started late), Read More

Yesterday was chemo day and surprisingly I didn’t jinx myself. We got in and out in decent time. Shane’s numbers look good and there were no concerns. Next week is inpatient as he has a tougher treatment which will leave his immune system weaker than most weeks.We have a big event coming up. Our friends have organized, Read More

There were a few bumps in the road, but we are going home today. Shane is doing well with the treatment and hasn’t had any side effects. His port needle did become dislodged, which led him to cry most of Wednesday night. We didn’t discover the problemuntil Thursday morning when his IV fluids started, Read More

Went to see Paul, Michele, and Shane last night. The little man is looking good and he is so happy. While he sits there saying DaDa (MaMa is not in the vocabulary yet), he smiles and plays, and I think was flirting with a few nurses. Paul and Michele are so strong and everyone, Read More