What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
The weight of childhood cancer During the month of September, I try to post a little bit of our childhood cancer journey. Sometimes I slip up and get busy and other times, this month…the memories, our reality is just too overwhelming. I feel as though it’s our responsibility to take part in raising awareness, Read More
I try to ignore it. Brush it aside like my behavior and mood is because it’s back to school or because we were traveling or I’m trying to find our groove. Sounds good, right? But, I can’t deny it. My husband knows me better than anyone, well except for my mom. People assume that, Read More
We are incredibly thankful for our partnership with the Children’s Cancer Therapy Development Institute. As a parent, you feel helpless when your child is fighting for their life. While, our story did not end the way we wanted to, we are able to continue Shane’s fight and legacy through cc-tdi. The guidance and compassion, Read More
Today Chase and Ella went back to school for the 2018-2019 school year. It’s a mixed emotions type of day. Shane would have joined them both. Today was supposed to be HIS first day of Kindergarten. It hurts my heart to know there is a missing person who should be standing beside them, taking, Read More
Thank you to everyone who battled the winds and came out to Chase and Ella’s Alex’s Lemonade Stand! Ella’s outspoken poster advertising and Chase’s lemonade distribution led to them raising close to $600! Many thanks for another successful year raising awareness and research funds for childhood cancer.
Day 2: The Siblings Much in our family has changed since Shane took his last breathe on March 30, 2015. Our focus then and now has always been on Chase and Ella and now Will. To encourage them to look at the positive things in life. To let them know that bad things can, Read More
Day 1: I’m going throw it back to a post we wrote at the beginning of childhood cancer awareness month in 2014. Today we continue Shane’s fight. He should be here. He would be excited to start his first day of Kindergarten at the same school as his siblings. Cancer took that moment and, Read More
Your smile is everything. It’s a reminder of the joy and laughter you brought to our lives. Whenever things are rough, I often think of your face and am reminded of your strength and resilience…my goodness it was great even only at the age of one. When things got rough and you were very, Read More
Tomorrow will be Shane’s 5th birthday. We were only privileged to celebrate one birthday with our little man. We made it an amazing day for him and us and everyone around us who loved and supported him. We will never forget those who took the time and came out to celebrate that day with, Read More
We are so thankful to everyone who came out on Saturday to our 4th Annual Celebration of Life event! We successfully raised $20,000 this year! Thank you to the 2007 soccer players (and their parents) from the Fishtown Rowdies, 1776 United FC, Philadelphia Union youth academy team and VE Gunners for their participation in, Read More
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