What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
I remember 5 years ago today and Shane had just finished his first round of chemo. We were inpatient and it was the first time I had to spend time away from the kids for Shane’s cancer journey. This picture is the one we took when Shane (and I) finally came home. We were, Read More
Four years and it doesn’t get any easier. We are living life to our fullest, never forgetting and always pushing forward with you by our side. We love and miss you forever Shane.
CHOP contacted us in the Fall about an article they were writing highlighting the Palliative Care Team (PACT). They asked if we would like to contribute and of course we did. They had a photographer come out and take pictures of Chase & Ella working with their child life specialist, Kelly. They were making, Read More
I’ve been thinking a lot about Shane and the dreaded month of March as it approaches. Time has definitely soften the blow this month brings. This year is a big one for me and I’m feeling particularly anxious about it. I’m thankful to Paul and the kids for recognizing my uneasiness and their attempts, Read More
We were first invited to attend ASHS Mini-THON in 2015. Shane attended with us. He passed 17 days after we spoke. It’s been four years, so while some of the students who met him have moved on, there are always new amazing students committed to raising awareness. We thank you for all that you, Read More
“Time of year” is continuous and cyclical. Its grief squeezing the breath out of me. It’s mostly hidden, but ever present. The holidays are over and time slows a bit. I feel like I’m drowning in thoughts, memories, all painful and wishful. I worry over things I can’t control. Hello grief. Hello anxiety. Thanks, Read More
Research is the key. We are so grateful for our partnership and that Shane’s tumors cells have assisted in pushing forward a clinical trial. It’s honestly the best gift we ever gave and one we never had to think twice about. via: https://www.facebook.com/thechildhoodcancerproject/photos/a.460857917581173/800619860271642/?type=3&theater The Childhood Cancer Project is proud to support the work of, Read More
For a bereaved parent, each new year draws us further from the one we lost. 2019 will mark 4 years since Shane passed. It’s heartbreaking to realize we have been living without him for that long. But, we move forward with him by our side. He is remembered each and every day by us., Read More
Thank you to Jennie Rose, Amanda Seguinot, Lorac Nedgo and Deborah Pann for your generous donations. The Target Cuthbert Blvd made an incredible $500 gift card donation to the CHOP PACT team on behalf of Shane’s Future Days. Thank you for supporting the PACT families and issuing these gift cards in Shane’s name❤️ We, Read More
The 21st is almost here and I wanted to pause and say THANK YOU to those who helped Shane’s Future Days brighten families affected by childhood cancer this holiday season. -Our CHOP PACT team gift card drive and Holiday Gift Drive Not only were we able to donate over $500 in gift cards, we, Read More
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