I’ve been using September to raise awareness for childhood cancer, as it’s the “designated” month for childhood cancer. In reality, everyday is a day for awareness when you have gone through what we have. I look around the stores and besides seeing Halloween decorations out before school started, I’m now seeing Christmas themes. If, Read More
Making Childhood Cancer a National Priority Take a moment and read this powerful article written by Jonathan Agin. He is one of the strongest voices within the childhood cancer community. After losing his daughter to DIPG, he has made his life’s mission about advocacy for our children. http://www.realclearhealth.com/articles/2016/09/15/ childhood_cancer_noahs_ark_and_my_daughter_110094.html
Thank you all so much for your kind words and thoughts of Shane. It’s very touching to read your words and to know how impactful Shane has been. I don’t write these posts because I think I’m strong or wish to be inspirational. The only motivation I have is to bring to light the, Read More
This is a fairly difficult one. This video is of Shane 18 days before he passed. You can see the toll the radiation took on his head. Those are the remains of radiation burns.This looked GREAT compared to what it looked like a week before. It started as a small red patch at the, Read More
Day 13: Shane’s type: alveolar rhabdomyosarcoma: Less than 10% in his age group
15 years ago today our country experienced a horrific tragedy. We will always remember that day so clearly. We remember those who lost their lives, those brave rescuers and those who lost loved ones. Paul and I were living in the DC area at the time. Paul’s apartment was just blocks away from the, Read More
No truer words to describe children with cancer. Shane, you are our hero.
Day 9: Thinking out of the box What was the driving force behind Shane’s Future Days? Easy. Research….Childhood Cancer Research. On March 6, 2015, we took Shane to CHOP for his last clinical visit. It was one of those trips where you knew what the answers would be and you dreaded going, but it, Read More