What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
When your child is diagnosed with cancer, you feel isolated from everyone. It’s not necessarily that people make you feel like that, well some do, but you just are. You are that, “cancer family.” The childhood cancer community is similar to normal society. People who have nothing in common, find commonality and friendship because, Read More
Well, it’s March and being snowed in has given me more than enough time to reflect. Thank you all for your comments on my recent post. I post as a healthy way to release my thoughts (I journal too). I do think that many of you who have followed our, Read More
Tomorrow is March. I don’t have to look at a calendar to know, I can feel it. The exhaustion, avoidance, sadness and dread has already taken over my body. Paul feels it too. He asked me last night why he was so tired. I just replied, “it’s almost March.” Grief is personal, random and, Read More
Day 7: Events for a Cause! TODAY: The Kendra Scott store at Suburban Square in Ardmore, PA is holding a Kendra Gives Back Sips and Sweets to benefit Shane’s Future Days during Childhood Cancer Awareness month! When: Today, Thursday September 7, 2017 6PM – 8PM *If you do not live in the area, you, Read More
Day 5: Even though Shane’s life ended before it began, he is a hero. He fought just as hard as those who survived. He has left his mark on us and others touched by his gentle spirit. We continue his fight and for children like him. Someday his cancer will have more options, better, Read More
The reality that summer is almost over is upon us. September is not just the start of the school year for us, but more importantly it’s our month to raise our voices even higher than normal about Childhood Cancer. September is Childhood Cancer Awareness Month. This year is our busiest yet. We are proud, Read More
Sunday was when the grief starting creeping in. THIS week is THE week and TODAY marks the two year anniversary of Shane’s passing. On one hand, time has moved forward slowly and on the other, in the blink of an eye. But, everyday I see his beautiful smile and bright blue eyes and can, Read More
The Holidays are here and today is “Giving Tuesday.” Life is short. “Things” just accumulate. Why not make a difference to those affected by rare childhood cancer? After Shane passed, our approach to the holidays completely changed for our children. The list is shorter and follows the: want, need, wear, read, share, experience and, Read More
Please vote!* We nominated The Children’s Cancer Therapy Development Institute as a nonprofit that inspires and is meaningful to us. *Please click on Shane’s picture and then “like” our entry. Each “like” counts as a vote. Thank you! https://www.facebook.com/gatesfoundation/app/1160921547334883/?app_data=%2Fgallery%2F7520215976897
September 30: Today is the last day of childhood cancer awareness month. For families who have been touched by childhood cancer, it never ends….even in death. This month,1,290 children have been diagnosed with cancer and approximately 163 died this month from cancer. Our mission for Shane’s Future Days is to continue to raise money for research, Read More
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