What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
September 30: Today is the last day of childhood cancer awareness month. For families who have been touched by childhood cancer, it never ends….even in death. This month,1,290 children have been diagnosed with cancer and approximately 163 died this month from cancer. Our mission for Shane’s Future Days is to continue to raise money for research, Read More
Day 29: September is almost over, but our fight for awareness, research and assistance doesn’t end when the month does. Thank you for reading our posts, liking our page, sharing our page and helping to spread the reality of childhood cancer. We don’t just do this to give meaning to Shane’s life, but for, Read More
Say his name to us. Acknowledge that our children had a baby brother.. Let go of the thoughts and practices of the past….they only lead to more complications. Shane…. Please Don’t Forget About My Child
Day 27: We present to you, a visual image of Shane’s tumor cells. We are grateful for our collaboration with The Children’s Cancer Therapy Development Institute. Tumor donation and its research is a fundamental part of understanding Shane’s type of cancer. Dr. Keller has said to me: “Tumor donations, particular the tumors that defy, Read More
Day 26: On Sunday morning, we learned of the tragic passing of Florida Marlins pitcher Jose Fernandez in a boating accident. Not only is Fernandez considered to be the best young pitcher in baseball, but he is known for his charitable giving within the pediatric rhabdomyosarcoma community. In 2013, Fernandez was named Rookie of, Read More
Day 25: Two years ago, we gathered by the Swann Fountain on the Ben Franklin Parkway surrounded by many family and friends. It was the CHOP Parkway Walk/Run benefiting the oncology unit. It was an amazing experience. Shane was doing well and we were so full of hope and determination. It was perfect and, Read More
I was thinking about what to write about today and Ella reminded me of what it should be about. Children grieve too. I’ve mentioned this. The problem is people don’t always listen. The truth is my kids have been through more than I ever wanted them to. What I’m learning about both of them, Read More
Paul and I took the kids to the Phillies game tonight. This was the first time I was back to the Hall of Fame Club since Shane was there. He went twice. First time, he couldn’t walk yet, but the second he was strutting around the HOF club like he owned it! He loved, Read More
Our magic number for CHOP was 101.4. Once Shane was diagnosed and we had our “team cancer meeting,” they tell you you need to attend a cancer 101 course through the hospital. Whoever was going to be involved in Shane’s care was urged to attend. The most important topic of that meeting was the, Read More
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