What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
On March 30, 2015 we said goodbye to Shane. This day is never easy for us. Never is, and never will be. Since Shane passed, March has been a tough month for us, but we move forward. His life put life into perspective. You truly realize what’s important. We are so thankful he was, Read More
Tomorrow is March. I don’t have to look at a calendar to know, I can feel it. The exhaustion, avoidance, sadness and dread has already taken over my body. Paul feels it too. He asked me last night why he was so tired. I just replied, “it’s almost March.” Grief is personal, random and, Read More
Tomorrow is Ella’s 7th birthday. Those of you who have been with us for a while, may remember that Shane and I had to stay overnight the night before Ella’s 4th birthday (yes, it’s really been 3 years already) at CHOP. Shane had to have G-tube surgery in order to receive a new chemo, Read More
Today I delivered the last of our holiday gifts. I then bawled for a half hour before I could pull myself out of it. So many memories of that time with Shane and the story of the family hit home. There are just so many things that occur in a family’s life when your, Read More
Can you feel it? The hustle & bustle of the holidays. I feel it too. I want to put into perspective what some families affected by childhood cancer are feeling. What we felt a short 3 years ago. What we still feel in terms of our grief. Some of the families we are helping, Read More
Day 19: Shane’s Future Days In December 2014, our friends urged us to create a foundation in Shane’s honor. We were still in the middle of our fight and it seemed like the furthest thing from our mind, but with their support and encouragement, Shane’s Future Days was established. Research and advocacy were the, Read More
Day 5: Even though Shane’s life ended before it began, he is a hero. He fought just as hard as those who survived. He has left his mark on us and others touched by his gentle spirit. We continue his fight and for children like him. Someday his cancer will have more options, better, Read More
Day 2: IMAGINE ….🎗🎗🎗 Imagine taking a child to the hospital… Imagine being taken into a small room and being told it’s a tumour… Imagine holding a child down so needles can be inserted… Imagine watching a child being taken to theatre for surgery… Imagine holding a child screaming in pain, unable to do, Read More
The morning of his 4th Birthday, (7/11), Paul and I received an email from Dr. Keller, the researcher from cc-tdi. He was asking if it was OK to feature Shane and our family in a grassroots crowdfunding campaign for their Legacy Gift program. The email was truly a gift to us because he had, Read More
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