What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
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Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
I’ve been using September to raise awareness for childhood cancer, as it’s the “designated” month for childhood cancer. In reality, everyday is a day for awareness when you have gone through what we have. I look around the stores and besides seeing Halloween decorations out before school started, I’m now seeing Christmas themes. If, Read More
Making Childhood Cancer a National Priority Take a moment and read this powerful article written by Jonathan Agin. He is one of the strongest voices within the childhood cancer community. After losing his daughter to DIPG, he has made his life’s mission about advocacy for our children. http://www.realclearhealth.com/articles/2016/09/15/ childhood_cancer_noahs_ark_and_my_daughter_110094.html
Thank you all so much for your kind words and thoughts of Shane. It’s very touching to read your words and to know how impactful Shane has been. I don’t write these posts because I think I’m strong or wish to be inspirational. The only motivation I have is to bring to light the, Read More
This is a fairly difficult one. This video is of Shane 18 days before he passed. You can see the toll the radiation took on his head. Those are the remains of radiation burns.This looked GREAT compared to what it looked like a week before. It started as a small red patch at the, Read More
No truer words to describe children with cancer. Shane, you are our hero.
Today, I got by “with a little help from my friends.” It’s Back to School day for Chase and Ella. It’s a difficult day on many levels. First, Ella entered Kindergarten. This alone saddens me. Where have the years gone when my little shadow was playing school and trying to read over her brother’s, Read More
I’ve been seeing this over the last couple days and it brought me back. This was us with Shane during his entire treatment. We had gloves in our diaper bag, at my in-laws, in his room…everywhere. As I mentioned before, we were incredibly blessed that Shane took to his chemo treatments so well. He, Read More
Day 2: Last year I approached September as a cleansing of thoughts in terms of our cancer journey with Shane. There are certain topics as we move forward that come to mind. These will come in time within the month. Some are difficult and others uplifting. Heading into the holiday weekend, I will begin, Read More
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