What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
All the gifts are in & wrapped! We dropped off our gifts to The Breathing Room Foundation yesterday. The rest (pictured) will be delivered early next week. 🎅🏻 We got everything from an American Girl doll, Hatchimal (special thanks to some awesome friends!) to coats, boots, diapers, gift cards and many other clothing and toy items! Thank, Read More
The Holidays are here and today is “Giving Tuesday.” Life is short. “Things” just accumulate. Why not make a difference to those affected by rare childhood cancer? After Shane passed, our approach to the holidays completely changed for our children. The list is shorter and follows the: want, need, wear, read, share, experience and, Read More
A friend of the family dedicated this brick to Shane. A little piece of him is in NEPA. On our way home from spending the holiday in my hometown, we stopped and saw it in person. It was touching, a bit sad and a reminder that indeed our son’s star does shine brightly in, Read More
Please vote!* We nominated The Children’s Cancer Therapy Development Institute as a nonprofit that inspires and is meaningful to us. *Please click on Shane’s picture and then “like” our entry. Each “like” counts as a vote. Thank you! https://www.facebook.com/gatesfoundation/app/1160921547334883/?app_data=%2Fgallery%2F7520215976897
I know we have been quiet, but we assure you… we have been busy! This holiday season we are thankful to be able to assist quite a few families this year. We have completed two families wish lists so far! One was a single parent with one child and the other was a family, Read More
From Paul: Last night we were lucky enough to see Temple of the Dog at the Tower, thanks to a friend. This band was formed as a tribute when a band member passed away from a heroin OD. Tonight TOTD opened with Say Hello to Heaven. While this song is about losing a, Read More
Yep, this is such a thing and THANK GOODNESS for it. We need people to be more aware that it is OK and healthy to talk about those we loved and lost. At whatever age. Chase and Ella have been exceptional in their understanding and vocalness to us about the loss of their brother., Read More
September 30: Today is the last day of childhood cancer awareness month. For families who have been touched by childhood cancer, it never ends….even in death. This month,1,290 children have been diagnosed with cancer and approximately 163 died this month from cancer. Our mission for Shane’s Future Days is to continue to raise money for research, Read More
Day 29: September is almost over, but our fight for awareness, research and assistance doesn’t end when the month does. Thank you for reading our posts, liking our page, sharing our page and helping to spread the reality of childhood cancer. We don’t just do this to give meaning to Shane’s life, but for, Read More
Say his name to us. Acknowledge that our children had a baby brother.. Let go of the thoughts and practices of the past….they only lead to more complications. Shane…. Please Don’t Forget About My Child
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