What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
Thank you all so much for your kind words and thoughts of Shane. It’s very touching to read your words and to know how impactful Shane has been. I don’t write these posts because I think I’m strong or wish to be inspirational. The only motivation I have is to bring to light the, Read More
This is a fairly difficult one. This video is of Shane 18 days before he passed. You can see the toll the radiation took on his head. Those are the remains of radiation burns.This looked GREAT compared to what it looked like a week before. It started as a small red patch at the, Read More
Day 13: Shane’s type: alveolar rhabdomyosarcoma: Less than 10% in his age group
15 years ago today our country experienced a horrific tragedy. We will always remember that day so clearly. We remember those who lost their lives, those brave rescuers and those who lost loved ones. Paul and I were living in the DC area at the time. Paul’s apartment was just blocks away from the, Read More
No truer words to describe children with cancer. Shane, you are our hero.
Day 9: Thinking out of the box What was the driving force behind Shane’s Future Days? Easy. Research….Childhood Cancer Research. On March 6, 2015, we took Shane to CHOP for his last clinical visit. It was one of those trips where you knew what the answers would be and you dreaded going, but it, Read More
Day 8: Community Paul is a PSU alum and I can tell you that as long as I’ve known him, he has ALWAYS stopped and given to the PSU student canners. This was before we personally knew the reality of childhood cancer. In March 2015, we were asked to speak at what will be, Read More
Today, I got by “with a little help from my friends.” It’s Back to School day for Chase and Ella. It’s a difficult day on many levels. First, Ella entered Kindergarten. This alone saddens me. Where have the years gone when my little shadow was playing school and trying to read over her brother’s, Read More
I’ve been seeing this over the last couple days and it brought me back. This was us with Shane during his entire treatment. We had gloves in our diaper bag, at my in-laws, in his room…everywhere. As I mentioned before, we were incredibly blessed that Shane took to his chemo treatments so well. He, Read More
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