What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
Even though Shane’s life ended before it began, he is a hero. He fought just as hard as those who survived. He has left his mark on us and others touched by his gentle spirit. We continue his fight and for children like him. Someday his cancer will have more options, better treatments and, Read More
On 9/1/16 , our child life therapist from CHOP’s PACT team came over for a visit. The kids completed craft projects to celebrate Shane and childhood cancer awareness month. During this time, Chase and Ella can safely talk about their feelings of Shane and cancer in general. Kelly has been with them, Read More
Day 2: Last year I approached September as a cleansing of thoughts in terms of our cancer journey with Shane. There are certain topics as we move forward that come to mind. These will come in time within the month. Some are difficult and others uplifting. Heading into the holiday weekend, I will begin, Read More
Our goal as parents are not only to raise kind and loving children, but for them to realize the world is bigger than themselves. Chase wanted to do an Alex’s Lemonade Stand ever since Shane was diagnosed. Last year, he successfully raised over $1400. He enjoyed doing it so much, he committed to doing, Read More
On Thursday, August 4, 2016, we donated the money raised from our Pearl Jam #tailgate4good with the Phan Cave to Dana Farber Cancer Center. The money will go towards their genetic research of rhabdomyosarcoma in memory of Baby Shane. A lot of memories came rushing back as we pulled into the parking garage. It was there, that we, Read More
In continuing with our efforts to support the Children’s Cancer Therapy Development Institute, we are proud to announce that we will be donating $10,000 towards their ARMS research project. Paul and I will not be able to attend the pediatric nano course this year. We hope to travel out to their new facilitates in, Read More
Paul explained at our second annual Celebration of Life where exactly the money we raised goes. Here is the speech he gave:
Two weeks ago tomorrow, Ella had her tonsils and adenoids removed. It was deemed necessary and so we headed back into a medical setting. Everything went well. It was all a familiar in terms of pre-surgery and post-surgery. The whole process brought back a lot of memories for Paul and I. It also brought, Read More
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