What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
Day 27: We present to you, a visual image of Shane’s tumor cells. We are grateful for our collaboration with The Children’s Cancer Therapy Development Institute. Tumor donation and its research is a fundamental part of understanding Shane’s type of cancer. Dr. Keller has said to me: “Tumor donations, particular the tumors that defy, Read More
Day 25: Two years ago, we gathered by the Swann Fountain on the Ben Franklin Parkway surrounded by many family and friends. It was the CHOP Parkway Walk/Run benefiting the oncology unit. It was an amazing experience. Shane was doing well and we were so full of hope and determination. It was perfect and, Read More
As a family who has been through a diagnosis and whirlwind within the cancer world, we have found so much support and love from our community. When we heard about a young girl from our community needing prayers and support we wanted to help. The ’07 VE Gunners and ’07 PA Rush Academy teams, Read More
I was thinking about what to write about today and Ella reminded me of what it should be about. Children grieve too. I’ve mentioned this. The problem is people don’t always listen. The truth is my kids have been through more than I ever wanted them to. What I’m learning about both of them, Read More
Paul and I took the kids to the Phillies game tonight. This was the first time I was back to the Hall of Fame Club since Shane was there. He went twice. First time, he couldn’t walk yet, but the second he was strutting around the HOF club like he owned it! He loved, Read More
Our magic number for CHOP was 101.4. Once Shane was diagnosed and we had our “team cancer meeting,” they tell you you need to attend a cancer 101 course through the hospital. Whoever was going to be involved in Shane’s care was urged to attend. The most important topic of that meeting was the, Read More
I’ve been using September to raise awareness for childhood cancer, as it’s the “designated” month for childhood cancer. In reality, everyday is a day for awareness when you have gone through what we have. I look around the stores and besides seeing Halloween decorations out before school started, I’m now seeing Christmas themes. If, Read More
Making Childhood Cancer a National Priority Take a moment and read this powerful article written by Jonathan Agin. He is one of the strongest voices within the childhood cancer community. After losing his daughter to DIPG, he has made his life’s mission about advocacy for our children. http://www.realclearhealth.com/articles/2016/09/15/ childhood_cancer_noahs_ark_and_my_daughter_110094.html
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