What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
The care Shane and his siblings received from Kelly and this program is nothing short of amazing. The emotional well being of a child and their siblings through and after a cancer diagnosis is something that should not be overlooked. We are forever grateful for the skills and outlets, this program has given our, Read More
The countdown is on! A special thank you to the Walt Disney Company. They graciously donated 4 one-day Disney Park Hopper passes for our 4th Celebration of Life event!
Don’t forget to register for tickets on our website. Those who purchase tickets ahead of time save money and will be entered into a raffle to win a YETI prize pack! Lots of great items to raise money for childhood cancer research and programs!
I am an only child, so it’s hard for me to relate to a day like this. I almost had a sibling. My parents told me on a special trip to Philadelphia where my father was stationed with the Navy. They told me I was going to be a big sister and gave me, Read More
When your child is diagnosed with cancer, you feel isolated from everyone. It’s not necessarily that people make you feel like that, well some do, but you just are. You are that, “cancer family.” The childhood cancer community is similar to normal society. People who have nothing in common, find commonality and friendship because, Read More
On March 30, 2015 we said goodbye to Shane. This day is never easy for us. Never is, and never will be. Since Shane passed, March has been a tough month for us, but we move forward. His life put life into perspective. You truly realize what’s important. We are so thankful he was, Read More
Today was the first day of the kid’s spring break. It was also a perfect day for their child life specialist from CHOP’s PACT team to visit. Did you know that March is child life specialist month? These positions are fully funded by donations. They are incredibly important to the emotional well being of, Read More
March 28, 2014 We received Shane’s official diagnosis. We waited all day to hear from the doctors. There was a weight on us. Our baby had cancer, but as we mentioned before, when we left the hospital two days before, the doctors said it was treatable. We were optimistic. At 4pm, my phone rang., Read More
Well, it’s March and being snowed in has given me more than enough time to reflect. Thank you all for your comments on my recent post. I post as a healthy way to release my thoughts (I journal too). I do think that many of you who have followed our, Read More
Tomorrow is March. I don’t have to look at a calendar to know, I can feel it. The exhaustion, avoidance, sadness and dread has already taken over my body. Paul feels it too. He asked me last night why he was so tired. I just replied, “it’s almost March.” Grief is personal, random and, Read More
Follow Us