What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
As a family who has been through a diagnosis and whirlwind within the cancer world, we have found so much support and love from our community. When we heard about a young girl from our community needing prayers and support we wanted to help. The ’07 VE Gunners and ’07 PA Rush Academy teams, Read More
I was thinking about what to write about today and Ella reminded me of what it should be about. Children grieve too. I’ve mentioned this. The problem is people don’t always listen. The truth is my kids have been through more than I ever wanted them to. What I’m learning about both of them, Read More
Our magic number for CHOP was 101.4. Once Shane was diagnosed and we had our “team cancer meeting,” they tell you you need to attend a cancer 101 course through the hospital. Whoever was going to be involved in Shane’s care was urged to attend. The most important topic of that meeting was the, Read More
I’ve been using September to raise awareness for childhood cancer, as it’s the “designated” month for childhood cancer. In reality, everyday is a day for awareness when you have gone through what we have. I look around the stores and besides seeing Halloween decorations out before school started, I’m now seeing Christmas themes. If, Read More
Making Childhood Cancer a National Priority Take a moment and read this powerful article written by Jonathan Agin. He is one of the strongest voices within the childhood cancer community. After losing his daughter to DIPG, he has made his life’s mission about advocacy for our children. http://www.realclearhealth.com/articles/2016/09/15/ childhood_cancer_noahs_ark_and_my_daughter_110094.html
This is a fairly difficult one. This video is of Shane 18 days before he passed. You can see the toll the radiation took on his head. Those are the remains of radiation burns.This looked GREAT compared to what it looked like a week before. It started as a small red patch at the, Read More
Today, I got by “with a little help from my friends.” It’s Back to School day for Chase and Ella. It’s a difficult day on many levels. First, Ella entered Kindergarten. This alone saddens me. Where have the years gone when my little shadow was playing school and trying to read over her brother’s, Read More
On 9/1/16 , our child life therapist from CHOP’s PACT team came over for a visit. The kids completed craft projects to celebrate Shane and childhood cancer awareness month. During this time, Chase and Ella can safely talk about their feelings of Shane and cancer in general. Kelly has been with them, Read More
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