What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
The countdown is on! A special thank you to the Walt Disney Company. They graciously donated 4 one-day Disney Park Hopper passes for our 4th Celebration of Life event!
Don’t forget to register for tickets on our website. Those who purchase tickets ahead of time save money and will be entered into a raffle to win a YETI prize pack! Lots of great items to raise money for childhood cancer research and programs!
March 28, 2014 We received Shane’s official diagnosis. We waited all day to hear from the doctors. There was a weight on us. Our baby had cancer, but as we mentioned before, when we left the hospital two days before, the doctors said it was treatable. We were optimistic. At 4pm, my phone rang., Read More
Tomorrow is March. I don’t have to look at a calendar to know, I can feel it. The exhaustion, avoidance, sadness and dread has already taken over my body. Paul feels it too. He asked me last night why he was so tired. I just replied, “it’s almost March.” Grief is personal, random and, Read More
Tomorrow is Ella’s 7th birthday. Those of you who have been with us for a while, may remember that Shane and I had to stay overnight the night before Ella’s 4th birthday (yes, it’s really been 3 years already) at CHOP. Shane had to have G-tube surgery in order to receive a new chemo, Read More
Philadelphia Eagles are headed to the Super Bowl!
Today Shane would have been 4.5. We never celebrate half-birthdays, but since he left us, it’s a mentally noted moment for us. This time last year, I wasn’t feeling so great and what seemed like a repeat in time, I took a random test, just like I did in November 2012 and discovered I, Read More
New Year’s Eve…. This will be entering our third year without Shane. My biggest challenge is not living in fear. I fear more now than I ever did. I mean, we live for the moments, but I approach a lot of my life now with deep caution. The death of your child can certainly, Read More
Today I delivered the last of our holiday gifts. I then bawled for a half hour before I could pull myself out of it. So many memories of that time with Shane and the story of the family hit home. There are just so many things that occur in a family’s life when your, Read More
Can you feel it? The hustle & bustle of the holidays. I feel it too. I want to put into perspective what some families affected by childhood cancer are feeling. What we felt a short 3 years ago. What we still feel in terms of our grief. Some of the families we are helping, Read More
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