What is Alveolar Rhabdomyosarcoma?
Click below to learn more about this rare childhood cancer and what we can do to fight it.
What does your donation goes towards?
Rhabdomyosarcoma is currently non-curable pediatric cancer and your donation goes directly to the research to help fight it.
The countdown is on! A special thank you to the Walt Disney Company. They graciously donated 4 one-day Disney Park Hopper passes for our 4th Celebration of Life event!
Don’t forget to register for tickets on our website. Those who purchase tickets ahead of time save money and will be entered into a raffle to win a YETI prize pack! Lots of great items to raise money for childhood cancer research and programs!
When your child is diagnosed with cancer, you feel isolated from everyone. It’s not necessarily that people make you feel like that, well some do, but you just are. You are that, “cancer family.” The childhood cancer community is similar to normal society. People who have nothing in common, find commonality and friendship because, Read More
March 28, 2014 We received Shane’s official diagnosis. We waited all day to hear from the doctors. There was a weight on us. Our baby had cancer, but as we mentioned before, when we left the hospital two days before, the doctors said it was treatable. We were optimistic. At 4pm, my phone rang., Read More
Tomorrow is Ella’s 7th birthday. Those of you who have been with us for a while, may remember that Shane and I had to stay overnight the night before Ella’s 4th birthday (yes, it’s really been 3 years already) at CHOP. Shane had to have G-tube surgery in order to receive a new chemo, Read More
New Year’s Eve…. This will be entering our third year without Shane. My biggest challenge is not living in fear. I fear more now than I ever did. I mean, we live for the moments, but I approach a lot of my life now with deep caution. The death of your child can certainly, Read More
Can you feel it? The hustle & bustle of the holidays. I feel it too. I want to put into perspective what some families affected by childhood cancer are feeling. What we felt a short 3 years ago. What we still feel in terms of our grief. Some of the families we are helping, Read More
Day 19: Shane’s Future Days In December 2014, our friends urged us to create a foundation in Shane’s honor. We were still in the middle of our fight and it seemed like the furthest thing from our mind, but with their support and encouragement, Shane’s Future Days was established. Research and advocacy were the, Read More
Today is September 1st, the start of childhood cancer awareness month. Every morning I wake up to this picture. It sits prominently on our dresser. My eyes immediately search to it. It’s beautiful and sad all at the same time. It reminds me of our beautiful son. It reminds me of the journey he, Read More
On February 3, 2017, our family was wecomed back to speak at ASHS’s Mini-THON. It’s an event we look forward to every year. Three years ago, we spoke with Baby Shane. It was when he took a turn for the worse, but the support and kindness shared by these students and community helped, Read More
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